Ehlers-Danlos Syndrome - Diagnosis

Not ready to share? Read other Patient Comments

How was your Ehlers-Danlos syndrome diagnosed?

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the black square:

How are Ehlers-Danlos syndromes diagnosed?

The diagnosis of Ehlers-Danlos syndrome is based upon the clinical findings of the patient and the family history. For some types of Ehlers-Danlos syndrome, a skin biopsy to determine the chemical makeup of the connective tissue can help to suggest the diagnosis.

Return to Ehlers-Danlos Syndrome

See what others are saying

Comment from: Piggygirl, 19-24 Male (Caregiver) Published: August 06

My son is 19 years old and has this intense pain in his shoulder for 3 years now. We have been to 4 different orthopedic doctors because we thought it was his rotor cuff. The last doctor asked us if he was double jointed. This is the second time a doctor has asked us this. I can remember when he was younger, he would always have pain in his knees and ankles but were told it was growing pains. This new doctor told us to ask our primary doctor to look into connective tissue diseases. We are at our wits' ends with this Ehlers-Danlos syndrome. I cannot see my son in pain anymore.

Was this comment helpful?Yes
Comment from: dlj, Male (Patient) Published: May 01

I was diagnosed with Ehlers-Danlos syndrome while in the process of filing for disability due to some minor genitourinary/gastrointestinal problems that turned into major problem post-surgical. He said my history pointed clearly to it, and was surprised my primary care physician did not suggest it already.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!

Health Solutions From Our Sponsors