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Down Syndrome - Experience

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Please describe your child's experience with an early intervention program for Down syndrome.

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What is Down syndrome?

Down syndrome (also called Trisomy 21) is a genetic disorder that occurs in approximately 1 of 800 live births. It is the leading cause of cognitive impairment. Down syndrome is associated with mild to moderate learning disabilities, developmental delays, characteristic facial features, and low muscle tone in early infancy. Many individuals with Down syndrome also have heart defects, leukemia, early-onset Alzheimer's disease, gastro-intestinal problems, and other health issues. The symptoms of Down syndrome range from mild to severe.

Life expectancy for individuals with Down syndrome has dramatically increased over the past few decades as medical care and social inclusion have improved. A person with Down syndrome in good health will on average live to age 55 or beyond.

Down syndrome is named after Doctor Langdon Down, who in 1866 first described the syndrome as a disorder. Although Doctor Down made some important observations about Down syndrome, he did not correctly identify what causes the disorder. It wasn't until 1959 that scientists discovered the genetic origin of Down syndrome.

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See what others are saying

Comment from: ashley brooks, 25-34 Female (Patient) Published: December 17

My 4 year old daughter has Down syndrome and I want to know if she will ever be able to care for a kid if she has kids and what to expect when she gets in school. Will she be able to learn enough to graduate from high school and go to college.

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Comment from: jakki, 45-54 Female (Caregiver) Published: February 18

I have a 24 year old Down syndrome girl; she recently was exposed to measles. I am puzzled because she was vaccine. Anybody have this experience with the child?

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