Guillain-Barr syndrome - Symptoms

Not ready to share? Read other Patient Comments

What symptoms did you experience with Guillain-Barr syndrome syndrome?

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

What is Guillain-Barré syndrome?

Guillain-Barré syndrome is a disorder in which the body's immune system attacks part of the peripheral nervous system.

Return to Guillain-Barre Syndrome

See what others are saying

Comment from: Jane Doe, 45-54 Female (Patient) Published: May 06

I had a terrible flu that I caught from my husband. It took me about two weeks to get better. I had one day of feeling normal. The next day I woke up and there was a feeling of pins and needles in my finger tips and the tops of my feet. It spread up my fingers and feet during the day and I noticed it was harder to climb the stairs. I was very tired. I knew about Guillain-Barre syndrome (GBS) and googled the symptoms and disease. It scared me as I had all the symptoms. By the end of the day I was having trouble standing up. I called Accident and Emergency and was told it was probably flu residuals. I went to bed. The next day, I woke up and could not stand up or move my legs. I went to the hospital in an ambulance. I got really lucky and the first doctor to treat me diagnosed me with GBS. I found out later they had 3 other cases of GBS currently in the hospital. They started me on IVIG right away. It progressed up my arms and legs until I was fully paralyzed. I could not urinate or defecate. A catheter was inserted, and was not removed for about a 3.5 weeks. It hit my breathing and my autonomic nervous system. I had to be put on a ventilator. My blood pressure sky rocketed, and my heart began to fail. I experienced extreme hallucinations when I closed my eyes. My feet and lower legs felt like they were in a vice. After about 5 days of pure agony, I began to be able to move my feet again and my right arm. Slowly, movement came back. I was taken off the ventilator after 9 days on it. I was sent down to a ward, where strength slowly returned to my arms, hand, and legs. Eventually I was able to move myself around the bed with my arms, I could text on my cell phone. Then I got a urinary tract infection from the catheter. It was removed, and I was put on IV antibiotics. Either I had an allergic reaction to the antibiotics or my GBS flared up again, but my hands got weaker again. After a few horrifying days in which they thought my GBS was returning, it reversed again. I was eventually discharged to physiotherapy two days after I did my first wobbly tottering stroll with a Zimmer frame around the ward. In physiotherapy, I was able to walk with a cane, climb stairs, stand up from a chair, and on my last day there I walked 3 unassisted steps. On the three month anniversary of my GBS, I saw my neurologist. My reflexes have fully returned. I can walk normally, do squats, jump, and run. There is still some numbness in my ankles and shins, and intermittent numbness in my skin. I also fatigue easily.

Was this comment helpful?Yes
Comment from: Loveless4756, 35-44 Female (Patient) Published: June 24

For my broken jaw they placed four screws in my gum line, two screws on the top, and two on the bottom. Afterwards they put rubber bands on the screws to help guide my bite and help it heal correctly.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!

Health Solutions From Our Sponsors