Klinefelter Syndrome - Symptoms

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What were the symptoms of your Klinefelter syndrome?

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What are the symptoms of the XXY condition?

Not all males with the condition have the same symptoms or to the same degree. Symptoms depend on how many XXY cells a man has, how much testosterone is in his body, and his age when the condition is diagnosed. The XXY condition can affect three main areas of development 1) physical, 2) language, and 3) social.

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See what others are saying

Comment from: frustrated, 45-54 Male (Patient) Published: March 31

I was diagnosed with Klinefelter syndrome in 2004 and did not believe what they said and got 3 opinions to diagnosis that I had it and I am 50 years old now. I have lung scarring with no cures or no healing and cannot be reversed. They think it just activated 1 year ago, it is called bronchiectasis. I had a heart catheterization just recently and that was fine, thank goodness. I now have liver lesions and/or cysts and a pancreatic cyst that may be related to Klinefelter. Doctors think I have some kind of serious liver disease called hepatic outflow obstruction which is a blockage in the liver veins flowing of blood and they say the correction is surgery. I was on testosterone therapy but from it acquired breast nodules and that the therapy was stopped which did not bother me at all, the side effects from testosterone therapy are major with liver cancer being one of them. I never had problems in that area anyway. I think that you have to be your own patient advocate and if a doctor cannot figure it out you go to someone else.

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Comment from: andromeda, 35-44 (Patient) Published: January 28

I was 10 when diagnosed with XXY Klinefelter syndrome. Now my problem was obvious to my doctor, I was more female than male having a full uterus and vagina plus fallopian tubes with sacs. Now on male side I have tiny testicles, normal size penis and dime size prostate to say. I am in my 40s now but with B cup breast and thin body (118 lb.) with curves, 22 inch waist plus 38 inch rear. My three doctors are still puzzled, I gave up trying to figure out what I am. But after graduating from medical school I now live a normal life.

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