Ehlers-Danlos Syndrome - Treatments

Not ready to share? Read other Patient Comments

How was your Ehlers-Danlos syndrome treated?

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver


* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!


I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

How are Ehlers-Danlos syndromes treated?

Ehlers-Danlos syndromes are treated according to the particular manifestations present in a given individual.

Skin protection (from injury of trauma and sun, etc.) is critical. Wounds must be tended with great care and infections treated and prevented. Suturing can be difficult as the skin can be extremely fragile.

Joint injury must be avoided. Occasionally, bracing may be necessary to maintain joint stability. Exercises that strengthen the muscles that support the joints can help to minimize joint injury. Contact sports and activities involving joint impact should be avoided.

Return to Ehlers-Danlos Syndrome

See what others are saying

Comment from: amcariboo, 35-44 Female (Patient) Published: January 08

I was diagnosed 6 years ago with EDS (Ehlers-Danlos syndrome). I have since 2001 undergone 10 surgeries. One was for my shoulder which separated and also for uterine prolapse. The prolapse happened when I was 25 and I had to get a hysterectomy. I was grateful to have been able to have had two daughters even though they were early due to the fact my body cannot support the weight of a child. My hips now dislocate at will and have had to call 911 once because it did not willingly pop back in. What I have is the looks I get. I am bruised from head to toe and I look like I have been beaten. I have also had to have a heart ablation. I hope that my children do not have this as no one else in my family does. We think my grandmother had it but, we do not know for sure. I wish every day for a new way to cope but, as of now I just take my medications like a good girl and appreciate the days when I can function and do stuff with my daughters.

Was this comment helpful?Yes
Comment from: TiaEstrella, 55-64 Female (Patient) Published: March 11

I am 62, diagnosed with Ehlers-Danlos hypermobility about 15 years ago. I believe I inherited the syndrome through my mother"s family, which has a long history of being double-jointed. My children and grandchildren appear to be symptom free. After too many years on Celebrex, Ultram, naproxen and other heavy-duty painkillers, a doctor of naturopathy helped me to wean off the drugs. I experienced more pain relief through non-processed natural foods and nutrition than I ever received from the drugs. Of course, nutrition does not cure EDS. In recent years I have received physical therapy and wear leg braces to minimize dislocations. My service dog enables mobility without the wheelchair. I continue very mild exercises and remain drug-free with careful nutritional discipline.

Was this comment helpful?Yes

STAY INFORMED

Get the latest health and medical information delivered direct to your inbox!