Amyloidosis - Symptoms

Not ready to share? Read other Patient Comments

What symptoms did you experience with amyloidosis?

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

What are amyloidosis symptoms and signs?

Symptoms in patients with amyloidosis result from abnormal functioning of the particular organs involved. There might be no symptoms until the disease is relatively advanced. The heart, kidneys, liver, bowels, skin, nerves, joints, and lungs can be affected. As a result, symptoms and signs are vague and can include fatigue, shortness of breath, weight loss, lack of appetite, numbness, tingling, carpal tunnel syndrome, weakness, hearing loss, enlarged tongue, bruising, and swelling of hands and feet. Amyloidosis in these organs leads to cardiomyopathy, heart failure, peripheral neuropathy, arthritis, malabsorption, diarrhea, and liver damage and failure. Amyloidosis affecting the kidney leads to "nephrotic syndrome," which is characterized by severe loss of protein in the urine and swelling of the extremities.

Return to Amyloidosis

See what others are saying

Comment from: mimi, 75 or over Male (Caregiver) Published: November 14

My dad was recently diagnosed with amyloidosis. For the past year or two he has had shoulder pain, leg/knee pain, fatigue, and spells of sweating, dizziness, rapid heartbeat. He was diagnosed with carpal tunnel a few years ago in both hands. He had surgery in one and has no more pain, but he still has numbness in his fingers. He was a farmer so he has always been very active. He gives out quickly now and is short of breath a lot. He still enjoys gardening and keeps a chair nearby so he can rest when he begins to feel weak and short of breath. He has been placed on a no- salt, low fat diet and was told to exercise. He is not on any medication for this other than aspirin. The doctors say there isn't anything that can be done for him. Interestingly, his brother died from multiple myeloma four years ago.

Was this comment helpful?Yes
Comment from: oldkarl, 75 or over Male (Patient) Published: March 01

I have made a list of the symptoms/markers of my amyloidosis. I read the literature, and any which are mentioned, and I have or have had at some point, I add them to the list. My list is now at Number 44, and counting. It seems the easiest to notice are heart failure, frothy urine, pain in the chest near the nipples, shortness of breath, and physical confusion. I give this list to my MD, and it really seems to help. Some of them apart from those mentioned above are protein in kidney and urine, enlargement of liver, pancreas, thyroid, parathyroid, kidney, lung, heart, and tongue, lung nodules, esophagus pain and GERD, atrial fibrillation, tachycardia, neuropathy and weakness in limbs, anemia and fatigue, diverticulosis and clay-colored stools, Sjogren's syndrome, ankylosing spondylitis and rheumatoid arthritis. In 2014 I experienced severe pulmonary problems, altered consciousness, and chronic cardiac and kidney failure. I have heard heart artery and capillary plugs, coronary bypass and stents prior to that.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!

Health Solutions From Our Sponsors