What's the life expectancy of your infant with trisomy 18?
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What is the life expectancy for someone with trisomy 18?
The average lifespan for infants born with trisomy 18 is 3 days to 2 weeks. Studies show that 60% to 75% of children survive for 24 hours, 20% to 60% for 1 week, 22% to 44% for 1 month, 9% to 18% for 6 months, and 5% to 10% for over 1 year. Therefore, there are quite a few affected children who require significant care and ongoing screening during their lives. Specialists in pediatric development, neurology, and genetics are often helpful with guiding the ongoing care of these children. There are great support groups such as the Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) and the Trisomy 18 Foundation for parents and providers seeking guidance. In addition there is an increasing approach to management which is moving away from pure palliative care into optimizing quality of life. This is due to the increasing evidence that a collaborative model of decision making involving parents and providers is a better way to approach the child with Edwards syndrome.