Sarcoidosis - Coping

Not ready to share? Read other Patient Comments

How have you been able to cope with your sarcoidosis?

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

Is it possible to prevent sarcoidosis?

The cause of sarcoidosis still remains unknown, so there is at present no known way to prevent or cure this disease. However, doctors have had a great deal of experience in management of the illness. It should be noted that most people with sarcoidosis lead normal lives.

If you have sarcoidosis, you can help yourself by following sensible health measures. You should not smoke. You should also avoid exposure to other substances such as dusts and chemicals that can harm your lungs.

If you have any symptoms of sarcoidosis, see your doctor regularly so that the illness can be watched and, if necessary, treated. Regular checkups with the doctor are important even if there are no symptoms present. Eye examinations by an eye specialist can detect early eye inflammation from sarcoidosis.

Although severe sarcoidosis can reduce the chances of becoming pregnant, particularly for older women, many young women with sarcoidosis have given birth to healthy babies while on treatment. Patients planning to have a baby should discuss the matter with their doctor. Medical checkups all through pregnancy and immediately thereafter are especially important for sarcoidosis patients. In some cases, bed rest is necessary during the last three months of pregnancy. In addition to family and close friends, a number of local lung organizations, other nonprofit health organizations, and self-help groups are available to help patients cope with sarcoidosis. By keeping in touch with them, you can share personal feelings and experiences. Members also share specific information on the latest scientific advances, where to find a sarcoidosis specialist, and how to improve one's self-image.

Return to Sarcoidosis

See what others are saying

Comment from: moa, 55-64 Female (Patient) Published: December 17

I now cope very well. I have been hospitalized 3 times and had extreme fatigue plus most other symptoms. My lung x-ray looked like spider webs. I suffer from sunstroke and shingles. I am a nurse and by good luck began working at exactly the place to help. Chelation therapy cleared excess calcium from lungs, tendons and muscle. Inflammation process lays down calcium. It can be anywhere. Excessive exposure to sun increases vitamin D causing calcium shift. I take rest, avoid chemicals, I can live positively with it by taking vitamin C (5gms) omegas, magnesium, ashwaganda, liver support, chromium and multivitamins.

Was this comment helpful?Yes
Comment from: Brissy, 45-54 Female (Patient) Published: November 21

I was diagnosed with sarcoidosis at the age of 24. I have been fortunate in that steroids are very effective with my condition. I have reduced lung function but have managed quite well. My major problem is that I catch every cold or flu going around. A few years ago I caught a cold at work and the next morning I was in hospital with pneumonia.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!

Health Solutions From Our Sponsors