PKD - Experience

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What is Polycystic Kidney Disease?

Polycystic kidney disease (PKD) is a genetic disorder characterized by the growth of numerous cysts in the kidneys. The kidneys are two organs, each about the size of a fist, located in the upper part of a person's abdomen, toward the back. The kidneys filter wastes and extra fluid from the blood to form urine. They also regulate amounts of certain vital substances in the body. When cysts form in the kidneys, they are filled with fluid. PKD cysts can profoundly enlarge the kidneys while replacing much of the normal structure, resulting in reduced kidney function and leading to kidney failure.

When PKD causes kidneys to fail-which usually happens after many years-the patient requires dialysis or kidney transplantation. About one-half of people with the most common type of PKD progress to kidney failure, also called end-stage renal disease (ESRD).

PKD can also cause cysts in the liver and problems in other organs, such as blood vessels in the brain and heart. The number of cysts as well as the complications they cause help doctors distinguish PKD from the usually harmless "simple" cysts that often form in the kidneys in later years of life.

In the United States, about 600,0001 people have PKD, and cystic disease is the fourth leading cause of kidney failure. Two major inherited forms of PKD exist:

  • Autosomal dominant PKD is the most common inherited form. Symptoms usually develop between the ages of 30 and 40, but they can begin earlier, even in childhood. About 90 percent of all PKD cases are autosomal dominant PKD.
  • Autosomal recessive PKD is a rare inherited form. Symptoms of autosomal recessive PKD begin in the earliest months of life, even in the womb.
Return to Polycystic Kidney Disease (PKD)

See what others are saying

Comment from: Amy, 55-64 Female (Patient) Published: January 30

I was diagnosed with PKD after my first baby was born, I was 26 years old. As an adolescent I always had burning micturition. It cleared on its own. After diagnosis I was put on heavy antibiotics and a specific diet. I was better. My renal profile is normal. During the second pregnancy I had hematuria off and on again controlled by medicines. Now I am 56 years old, I keep my weight under control and annually test my renal profile, lipid profile and ultrasound abdomen. My kidneys are now around 12 inches and have bilateral PKD. I avoid red meat and high protein diet and take a lot of liquids. I do keep a check on BP. I have headaches also. Rest all is healthy eating, a caring husband and children keep me going.

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Comment from: Mary, 65-74 Female (Patient) Published: May 21

I found out I had polycystic kidney disease (PKD) later in life through MRI. However I experienced high blood pressure early in life, early twenties. I had four miscarriages. I had one kidney infection on the left side. My blood pressure seems uncontrollable and tends to get higher with age. I am a small boned person with normal weight yet, I have developed a large stick-out stomach.

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