Trigeminal Neuralgia - Experience

Not ready to share? Read other Patient Comments

Please describe your experience with trigeminal neuralgia.

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white square:

What is trigeminal neuralgia?

Trigeminal neuralgia is inflammation of the trigeminal nerve, causing intense facial pain. It is also known as tic douloureax because the intense pain can cause patients to contort their face into a grimace and cause the head to move away from the pain. The obvious movement is known as a tic.

The pain of trigeminal neuralgia is intense and may be an isolated episode or may be occur every few hours, minutes, or seconds. There can be months or years between attacks, but in some patients whose pain is not well controlled; it can lead to a chronic pain syndrome, affecting activities of daily life and cause depression.

Though it can affect people of any age, trigeminal neuralgia tends to afflict people older than 60 years of age. It affects the right side of the face five times more often than the left.

Return to Trigeminal Neuralgia

See what others are saying

Comment from: Christine, 35-44 Female (Patient) Published: March 17

I developed trigeminal neuralgia after a nose surgery where too much of my inferior turbinates were cut out. The tissue inside my nose subsequently deteriorated and I got what is called empty nose syndrome. I then started getting strong, random electric shocks in the right side mostly, but sometimes left side of my nose, cheeks, eyes and scalp. My jaw aches and my teeth have a burning sensation. Medications don"t seem to help and make me feel awful. I"m am trying natural treatments. Fingers crossed

Was this comment helpful?Yes
Comment from: Sharon, 65-74 Female (Patient) Published: March 17

From 2008 to 2010, I suffered from the trigeminal neuralgia on the right side of my face. Then in May 2010 I went to have the nerve laser treated. I was great for 10 months. I had no more pain, no numbness or tingling. Since March 2010, I started with the numbness, tingling, itching, pulsing, and sometimes pain, but not the same pain as the nerve pain. I feel like I have a Novocain that never stopped working. I wonder if there is anything that can be done now to get the feeling back into the right side of my face. There is no distortion, just some weird sensations.

Was this comment helpful?Yes

Stay Informed!

Get the latest health and medical information delivered direct to your inbox FREE!