Trigeminal Neuralgia - Experience

Not ready to share? Read other Patient Comments

Please describe your experience with trigeminal neuralgia.

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

What is trigeminal neuralgia?

Trigeminal neuralgia is inflammation of the trigeminal nerve, causing intense facial pain. It is also known as tic douloureax because the intense pain can cause patients to contort their face into a grimace and cause the head to move away from the pain. The obvious movement is known as a tic.

The pain of trigeminal neuralgia is intense and may be an isolated episode or may be occur every few hours, minutes, or seconds. There can be months or years between attacks, but in some patients whose pain is not well controlled; it can lead to a chronic pain syndrome, affecting activities of daily life and cause depression.

Though it can affect people of any age, trigeminal neuralgia tends to afflict people older than 60 years of age. It affects the right side of the face five times more often than the left.

Return to Trigeminal Neuralgia

See what others are saying

Comment from: cagon, 45-54 Female (Patient) Published: June 06

I have been suffering with trigeminal neuralgia for a couple of years. I feel this started when I had a bad experience with a wisdom tooth extraction. After a couple of years of off and on, again pain started. This soon became pain all the time. I was taking 1200 mg a day of Tegretol. It took care of the pain but I could not think straight. I had a radiofrequency lesioning done as I was afraid of gamma knife and of the big brain surgery. So far it has been 2 months pain free and no more medicines. I have some jaw weakness, some days I speak better, and on others I need to concentrate and sound legible and I have constant burning in the mouth. But overall I am ok, a little pain.

Was this comment helpful?Yes
Comment from: MERNO, 55-64 Female (Patient) Published: June 23

I had a botched root canal done last year and suddenly had electric shocks down the whole right side of my face. The endodontist slammed a needle up into the roof of my mouth and I am sure this is what triggered my trigeminal neuralgia. I did very well on Lyrica and in 3 months it was gone. But it has reappeared after two things happened, one a tooth cleaning where my mouth was open for a long time, and an endoscopy 3 days later where I was told to bite down on a large piece of plastic and this kept my mouth and jaw open. I believe it is triggered by anything that requires me to keep my jaw and mouth open for a long period of time. I had planned on implants for some teeth but will not take the chance now! So many people have teeth removed thinking this is teeth related.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!

Health Solutions From Our Sponsors