Lichen Sclerosus - Symptoms

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What are the symptoms?

Early in the disease, small white spots appear on the skin. The spots are usually shiny and smooth. Later, the spots grow into bigger patches. The skin on the patches becomes thin and crinkled. Then the skin tears easily, and bright red or purple bruises are common. Sometimes, the skin becomes scarred. If the disease is a mild case, there may be no symptoms.

Other symptoms are:

  • Itching (very common)
  • Discomfort or pain
  • Bleeding
  • Blisters.
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See what others are saying

Comment from: Judy, 55-64 Female (Patient) Published: November 04

At this moment my entire perineal, vaginal, rectal area is swollen, painful, red, blistered, and itchy. I was diagnosed with lichens sclerosus by a gynecologist. He did a tissue biopsy about 6 years ago. When I had insurance I was able to keep it under control with clobetasol topical. I have no health insurance at this time and have had this mad outbreak for about a week and a half and am still working putting in 60 hours per week. It is so bad and painful I have a hard time sitting down. I feel as if I am being tortured. Wish I knew something I could do to relieve the symptoms without it costing me so much.

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Comment from: Frustrated, 55-64 Female (Patient) Published: December 10

It began after trauma to the vulva. It was biopsied and diagnosed as lichen sclerosus, treatment was clobetasol cream. The pain was excruciating; open sores and bleeding. Wiping was very painful. Doctor suggested dabbing instead. This resulted in labia scarring together over clitoris. Most of the labia was eaten away. I no longer have any sensation in the clitoris. Sex is painful. This disease has caused me great grief. It flares up and settles down. Cream keeps it from getting as bad as the 1st time. Cream thins skin. Use a tiny bit at a time. I have other autoimmune conditions as well. It took 3 gynecologists before correctly diagnosed. Read everything possible to educate yourself.

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