Neuromyelitis Optica - Experience

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What is neuromyelitis optica?

Neuromyelitis optica (NMO) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves and spinal cord.

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See what others are saying

Comment from: Sohi, 35-44 Male (Caregiver) Published: February 24

My brother in law is suffering from Devic's disease (neuromyelitis optica). The doctors said there is no cure, and he is very lazy to help himself and to move. Now his condition is much worse than before. His vision is not very good. We treated him with many doctors, even the herbal ones but no result. At the moment he is like a stick lying on the bed unable to move.

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Comment from: CH0812, 55-64 Female (Patient) Published: November 23

I was diagnosed with neuromyelitis optica (NMO) in 2000/2001 after several misdiagnoses, including multiple sclerosis (MS). My last severe attack was in 2011, I was admitted to the hospital and given Solu-Medrol but it did not restore the vision that was affected. I'm blind in my left eye and my right eye's vision is impaired. This is a culmination of 4 or 5 attacks in the course of 11 years. I am now on Rituxan whenever my blood tests warrant it, 1 gram 2 times within 2 week period. I have blood work every 3 months. My final diagnosis was NMO caused by lupus, which I was diagnosed with in 1978. I was in remission when the NMO symptoms began.

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