Retinitis Pigmentosa - Symptoms

Not ready to share? Read other Patient Comments

Please describe the signs and symptoms associated with retinitis pigmentosa.

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver


* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!


I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the black square:

What are retinitis pigmentosa symptoms and signs?

Since retinitis pigmentosa begins as rod degeneration, the patient first notices increasing difficulty in night vision, followed by difficulty seeing in the periphery. Slowly progressive constriction of the visual field leads to tunnel vision. A small area of central vision in both eyes usually persists for years. Generally night blindness precedes tunnel vision by years or even decades. Total blindness eventually ensues in most cases. The age of appearance of legal blindness ranges from as early as childhood to as late as the 40s.

Return to Retinitis Pigmentosa

See what others are saying

Comment from: Lewis, 35-44 Female (Patient) Published: March 03

I was diagnosed with retinitis pigmentosa (RP) in 2001, I am now 43. It is very hard to go out in public. I'm always tripping over people or running into the pole. People that don't know me get very upset when I bump into them. I sometime think I need to ask my doctor about using a walking stick. But then other people with RP are worse off than I am. I'm very thankful that I can still see.

Was this comment helpful?Yes
Comment from: FLAWRA, 35-44 Female (Patient) Published: January 21

I was diagnosed with retinitis pigmentosa (RP) at 14 and I am now 44. I have lived a full life. I still work running my own business, married, travel all the time, and refuse to give in to this disease. Your strong will is important! I first started by bumping into people and objects. Then the night vision set in. Rods floating in my vision. You see less than what a normal person sees threw a straw. You have difficulty with stairs and depth perception. I had a cataract surgery two years ago. I think my other eye is due for cataract surgery. I saw halos of light. Before the cataract surgery I used to see the traffic light as four green lights, and after the surgery it is sharp and clear. The central vision is getting worse and the peripheral vision is less. I am a very hard working independent person so the worse part of the vision loss is not driving and having to wait for people to take me to places. Oh yes the best way to deal with this disease is to let people know you have it and what to expect so when you ram into them they are not upset instead they understand and are helpful. Your attitude matters, everyone loves me and wants to help and hold on to me to get to places. I just went to Rome last summer with my niece and had a blast going up and down the stairs there (over 500 stairs at the Vatican alone)! Don't let this disease stop you from living. Enjoy every moment of vision you have. See what's out there and memorize it in case you can't see anymore.

Was this comment helpful?Yes

STAY INFORMED

Get the latest health and medical information delivered direct to your inbox!

Health Solutions From Our Sponsors