Parry-Romberg Syndrome - Signs and Symptoms

Not ready to share? Read other Patient Comments

Please describe the signs and symptoms of Parry-Romberg syndrome in someone you know.

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

What are the signs and symptoms of Parry-Romberg syndrome?

Initial facial changes usually involve the tissues above the upper jaw (maxilla) or between the nose and the upper corner of the lip (nasolabial fold) and subsequently progress to the angle of the mouth, areas around the eye, the brow, the ear, and the neck. The deterioration may also affect the tongue, the soft and fleshy part of the roof of the mouth, and the gums. The eye and cheek of the affected side may become sunken and facial hair may turn white and fall out (alopecia). In addition, the skin overlying affected areas may become darkly pigmented (hyperpigmentation) with, in some cases, areas of hyperpigmentation and patches of unpigmented skin (vitiligo). Parry-Romberg syndrome is also accompanied by neurological abnormalities including seizures and episodes of severe facial pain (trigeminal neuralgia).

Return to Parry-Romberg Syndrome

See what others are saying

Comment from: Buenajen, 25-34 Female (Patient) Published: January 05

When I was around eight Parry-Romberg syndrome started with my lip thinning only on my right side. Then I would get the facial nerve pain about every three years and my face would thin. My whole right side of my face and neck thinned out due to fat loss. My eye sunk back due to the fat loss. My right side of my jaw would lock. The eye doctor told me the pressure in my eye has dropped. I also have lost peripheral vision. I have double vision if I try to see peripherally, also have severe dry eye. My face has dark pigmentation. I have had dizzy spells and migraines. My rheumatologist diagnosed me with scleroderma morphea as well, on my back I have scleroderma. After having an endoscopy done they also found low pressure in my esophagus. All my CT scan and x rays of the brain came back normal. My rheumatologist and neurologist both diagnosed me through clinical findings.

Was this comment helpful?Yes
Comment from: johanna, 65-74 Female (Patient) Published: February 17

My Parry-Romberg syndrome started when I was 13 years old and progressed to half of my left face. My eye is sunken in and I had plastic surgery done three times. Liposuction of the fat from my stomach is injected in my face but it does not last. The last surgery was done 15 years ago. The disease has not stopped, I still slow more dents in my forehead.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!