1p36 Deletion Syndrome - Treatment

What type of treatment did your child receive for 1p36 deletion syndrome?

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What is the treatment for 1p36 deletion syndrome?

Treatment is limited; symptomatic treatment is the usual treatment available. The heart, eye, muscle tone, and swallowing problems may be reduced by specialists in those fields; the earlier the diagnosis and treatment, the more likely these problems will become manageable or minimized. Some clinicians report good results with behavior modification training. Some affected individuals do well and can participate in many social events, but not all individuals are successful.

Compassion, patience and understanding of the extent of an individual's capabilities can allow an individual to have a loving and rewarding relationship with family and friends. Some affected individuals may be able to learn to communicate with body and sign language; this ability may take considerable effort and training on both the affected person and caregiver's part to develop.

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