What type of porphyria do you have? Please discuss your experience.
Share your story with others:
MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.
What are the types of porphyria?
The table below lists each type of porphyria and the deficient enzyme responsible for the disorder. Porphyrias are often classified as acute or cutaneous. Acute types of porphyria affect the nervous system, whereas cutaneous types mainly affect the skin. Two forms of porphyria - hereditary coproporphyria and variegate porphyria -- may be either acute or cutaneous, or both.
Types of Porphyria
Type of Porphyria
delta-aminolevulinic acid dehydratase
acute intermittent porphyria
congenital erythropoietic porphyria
uroporphyrinogen III cosynthase
porphyria cutanea tarda
uroporphyrinogen decarboxylase (~50% deficiency)
uroporphyrinogen decarboxylase (~90% deficiency)
The most common type of porphyria overall is porphyria cutanea tarda. In the United States, acute intermittent porphyria is the most common acute porphyria.