Behcet's Syndrome - Experience

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What is Behçet's syndrome?

Behçet's syndrome is classically characterized as a triad of symptoms that include recurring crops of mouth ulcers (aphthous ulcers, canker sores), genital ulcers, and inflammation of a specialized area around the pupil of the eye termed the uvea. The inflammation of the area of the eye that is around the pupil is called uveitis. Behçet's syndrome is also sometimes referred to as Behçet's disease.

The cause of Behçet's syndrome is not known. The disease is relatively rare but is more frequent and severe in patients from the Eastern Mediterranean and Asia than those of European descent. Both inherited (genetic) and environmental factors, such as microbe infections, are suspected to be factors that contribute to the development of Behçet's syndrome. Behçet's syndrome is not proven to be contagious.

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See what others are saying

Comment from: Eve, 45-54 Female (Patient) Published: April 14

I"ve been diagnosed with Behcet's syndrome 3 years ago. I was referred to the eye hospital because of a very severe anterior uveitis in both eyes. I was very lucky to be caught in time and started treatment right away, I was on 25 mg of methotrexate for approximately 2 years but first was on prednisolone eye drop for 6 months. Today I'm doing fine and my eyes are back to what it was, I do have to wear glasses but hey! After all I'm going on 53 so... Just to let everyone know that if you or someone you know is experiencing some sort of blurred vision and pressure in their eyes please go see quickly your eye doctor, because if not treated and you have uveitis you'll go blind.

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Comment from: arl22, 25-34 Female (Patient) Published: February 10

I was diagnosed with Behcet's when I was 13. At that time, I got really sick and noticed my vaginal area started to hurt a lot. As a shy 7th grader, I was so embarrassed and didn't want to tell anyone, so I let it go until a genital ulcer grew to an alarming size and I was getting sicker. I went to the nurse at school who called my mom to take me to a doctor. When I went to the family doctor, they told my mom I needed to go the emergency room (ER) immediately. At the hospital, I had emergency surgery to remove the quickly spreading ulcer. From the school nurse to the hospital, I was asked several times if I was sexually active, which I definitely was not, ruling out any kind of STD (sexually transmitted disease). After the surgery, the surgeon said she had done some research (she had never heard of Behcet's) and found the only explanation of my symptoms was Behcet's. My problem now though, is that I have never had another genital ulcer since then, very little mouth ulcers, no skin lesions except for acne, and I don't think I have eye issues. So I'm not sure if I have Behcet's. Lately and over the last couple years, I have had some multiple sclerosis like symptoms such as weakness, tiredness, incontinence, shaking, etc. I got a ton of blood tests and a CT scan and everything came back normal. So now I don't know what I have and I also don't know whether or not I have Behcet's. I have had bad headaches behind my left eye since I was little, but didn't know if that was related to Behcet's until I read some of these posts. I would love any advice or opinions!

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