Alpha 1 Antitrypsin Deficiency - Effective Treatments

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What kinds of treatment have you received for your disease caused by an alpha-1 antitrypsin deficiency?

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Where can I find information about treatment for alpha-1 antitrypsin deficiency?

These resources address the management of alpha-1 antitrypsin deficiency and may include treatment providers.

  • Gene Review: Alpha-1-Antitrypsin Deficiency
Return to Alpha-1 Antitrypsin Deficiency

See what others are saying

Comment from: personanongrata, 45-54 Male (Patient) Published: April 12

I was misdiagnosed my whole life. By the time a doctor diagnosed correctly that it was alpha-1 antitrypsin deficiency, it was too late. I lie here tonight and do not believe I will make it through the night. Navigating through the health care system was a nightmare and fruitless. I was not able to acquire the proper treatment, and lie here at my daughter's home waiting for the light to go out.

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Comment from: maggiemoouniverse, 45-54 Female (Patient) Published: November 14

Our sister passed away with Alpha 1 related panniculitis and was also lung affected and eventually liver and systemically eaten away before her death in 2000. She was not treated with augmentation therapy. I was tested and diagnosed with severe type PiZZ and lung affected. In 2013 there is still no therapy available for severely affected patients. All there is available are inhalers, nebulizer therapy and a once off lung rehabilitation course and home oxygen therapy.

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