Amyloidosis - Other Illnesses

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Amyloidosis facts

  • Amyloidosis is a rare disease that is a consequence of abnormal protein (amyloid) deposits in body tissues and organs.
  • Amyloidosis can occur as an isolated disease or as a result of another illness.
  • Symptoms in patients with amyloidosis result from abnormal functioning of the particular organs affected.
  • Diagnosis of amyloidosis is made with a biopsy of involved tissue.
  • Treatment options for amyloidosis depend on the type of amyloidosis and involve correcting organ failure and treating any underlying conditions.
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See what others are saying

Comment from: berrypicker, 55-64 Female (Patient) Published: February 28

I was diagnosed in 2012 with amyloidosis. I thought I was having heart problems but that turned out to be acid reflux and the amyloid deposit was found in my stomach when they did the scope for the reflux. I also have an ulcer found at that time. I have Sjogren's syndrome and sub-acute cutaneous lupus. I take clobetasol for the plaques from the lupus, and Nexium for the reflux. I have no pain, but find I am often more tired than I was. I have read that reducing or eliminating gluten from the diet may help prevent some of the buildup of amyloid chains, and that there are some essential oils that may be of benefit. I am trying to structure my diet to remove refined sugar, gluten, red meat, caffeine, and all processed and deep fried foods. I'm also am adding omega 3, turmeric and probiotics along with my regular vitamins. I read that bromelain helps as well, and will add that when I check with my doctor.

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Comment from: Casey, 55-64 Male (Patient) Published: August 15

My father died of familial amyloidosis in 1987. I was diagnosed in 3/12 when I was 62 years old, I have type Thr60Ala. I have autonomic and peripheral nerve damage, and had cardiac amyloidosis as well. This type requires a heart/liver transplant from the same donor, I was on the waiting lists. I received the dual transplants in 12/13. I am now 8 months out, transplants are doing good, still have to contend with my transthyretin polyneuropathy symptoms. I may go on drug therapy soon, once my immunosuppressants go to lower maintenance dosages.

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