Alkaptonuria - Treatment and Resources

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What treatments or resources have helped you deal with symptoms related to alkaptonuria?

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Where can I find information about treatment for alkaptonuria?

These resources address the management of alkaptonuria and may include treatment providers.

  • Gene Review
  • Genetic Alliance

You might also find information on treatment of alkaptonuria in Educational resources and Patient support.

Return to Alkaptonuria

See what others are saying

Comment from: KumuKaya, 55-64 Female (Patient) Published: June 13

I was diagnosed with ohcronosis alkaptonuria (AKU). They only found it after having performed three major surgeries on my neck, none of the surgeries they tried ever healed, when they discovered I had AKU. They stopped trying to fix my neck and told me that my bones would never heal from the surgery they did. My neck could not be fixed.

Was this comment helpful?Yes
Comment from: stephanie, 45-54 Female (Patient) Published: September 29

I am trying the no meat, dairy, protein diet for alkaptonuria. I am also taking 1000 mg vitamin C a day.

Was this comment helpful?Yes


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