Spina Bifida - Describe Your Experience

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Please describe your experience with spina bifida and anencephaly (neural tube defects).

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What is spina bifida?

Spina bifida, which literally means "cleft spine," is characterized by the incomplete development of the brain, spinal cord, and/or meninges (the protective covering around the brain and spinal cord). It is the most common n eural tube defect in the United States -- affecting 1,500 to 2,000 of the more than 4 million babies born in the country each year. There are an estimated 166,000 individuals with spina bifida living in the United States.

Return to Spina Bifida and Anencephaly (Neural Tube Defects)

See what others are saying

Comment from: bsdjaguar, 75 or over Male (Caregiver) Published: July 17

My husband was born with spina bifida and had surgery right after his birth in 1929. It is miraculous he lived 86 years without any paralysis or any other symptoms until his early 80s. He then had some difficulty walking and various odd symptoms. He could not taste or smell and did not feel pain. He even had painless severe heart attacks. He had a wonderful life.

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Comment from: msrock12, 25-34 Female (Patient) Published: December 07

I was born with spina bifida in 1981. They told my mother there were many things I would probably never do. I can walk and go to the bathroom by myself. I eventually started getting seizures which they say are caused by the spina bifida and hydrocephalus. I take medication for them and haven't had a seizure in many years. If not for my neurosurgeon who always told me I could do anything I wanted to, this wouldn't have been possible.

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