Pseudotumor Cerebri - Treatment

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What kinds of treatment, including medication, did you receive for pseudotumor cerebri (idiopathic intracranial hypertension)?

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How is pseudotumor cerebri treated?

  • Obesity, other treatable diseases, and some medications can cause raised intracranial pressure and symptoms of pseudotumor cerebri.
  • A thorough medical history and physical examination is needed to evaluate these factors.
  • If a diagnosis of pseudotumor cerebri is confirmed, close, repeated ophthalmologic exams are required to monitor any changes in vision.
  • Drugs may be used to reduce fluid buildup and to relieve pressure.
  • Weight loss and cessation of certain drugs (including oral contraceptives, tetracycline, and a variety of steroids) may lead to improvement.
  • Surgery may be needed to remove pressure on the optic nerve. Therapeutic shunting, which involves surgically inserting a tube to drain CSF from the lower spine into the abdominal cavity, may be needed to remove excess CSF and relieve CSF pressure.
Return to Pseudotumor Cerebri (Idiopathic Intracranial Hypertension)

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Comment from: Elizabeth, 25-34 Female (Patient) Published: January 14

I take Topamax 100 mg, 1 in the morning and 2 in the evening. I also have tramadol for my headaches during the day. I just found out that that I have papilledema that is caused by a pseudotumor cerebri, in November of 2013. I started having changes in my vision when I went to my family doctor. She sent me to an ophthalmologist, who then sent me to a neurologist. Their main concern is keeping me from losing my eye sight.

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Comment from: ajatch, 25-34 Female (Patient) Published: January 23

I was diagnosed with PTC (pseudotumor cerebri) back in July 2013. Soon afterwards a blood clot was found in my brain. I take 1050 mg of Diamox every day (500 mg 3 times a day). I don't have many headaches anymore, and if I do, they're muscle tension headaches. However, the lower peripheral vision in my left eye gets blurry and distorted.

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