Pseudotumor Cerebri - Treatment

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What kinds of treatment, including medication, did you receive for pseudotumor cerebri (idiopathic intracranial hypertension)?

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How is pseudotumor cerebri treated?

  • Obesity, other treatable diseases, and some medications can cause raised intracranial pressure and symptoms of pseudotumor cerebri.
  • A thorough medical history and physical examination is needed to evaluate these factors.
  • If a diagnosis of pseudotumor cerebri is confirmed, close, repeated ophthalmologic exams are required to monitor any changes in vision.
  • Drugs may be used to reduce fluid buildup and to relieve pressure.
  • Weight loss and cessation of certain drugs (including oral contraceptives, tetracycline, and a variety of steroids) may lead to improvement.
  • Surgery may be needed to remove pressure on the optic nerve. Therapeutic shunting, which involves surgically inserting a tube to drain CSF from the lower spine into the abdominal cavity, may be needed to remove excess CSF and relieve CSF pressure.
Return to Pseudotumor Cerebri (Idiopathic Intracranial Hypertension)

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Comment from: rayofsunshine, 45-54 Female (Patient) Published: December 01

I have been fighting pseudotumor cerebri for about 10 solid years. I feel different from one day to the next. I only have painful headaches 3 to 4 times a year. However I am losing my right eye. I now know where my blind spot is and its getting bigger. I pop Tums for stomach upset. I am on 1000 mg Diamox and go to the gym. I get tremors and needles in my hands feet and face from the Diamox. I have stomach upset and am dizzy at times. I feel that this is never going away and I will always have to deal with this issue. My vision is blurry one day and could be a little clear the next. I got lost finding my way home once, and to my son's house. I am now training a service dog just in case it gets any worse. I share this with others to let them know they are not alone. I am thankful I read your post. It brought a little hope on some issues I have been having.

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Comment from: flowerbud, 45-54 Female (Patient) Published: December 30

I have had pseudotumor cerebri (PTC) for 35 years. It started after I gave birth 2 my oldest daughter. Since then I have had over 200 spinal taps, Chiari malformation eye surgery to drain the fluid from the back of my eye, 36 lumbar peritoneal shunt revisions. I am not over weight, I think I got it from high doses of prednisone. I had a morphine pain pump in for a year but made them take it out as I got tired of feeling like a zombie every day. My peripheral vision is gone. I live in pain every day but I have to push through. But some days that's impossible. I have to lay in bed sometimes up to a week. And please don't let the doctors bully you around, not them only you know your bodies. If I could only help us PTC suffers I would. Hope your journey with this horrible disease is short lived and not like mine that has lasted so long.

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