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Klippel-Trenaunay-Weber Syndrome - Prognosis

What is the prognosis for your Klippel-Trenaunay-Weber syndrome? How do you manage your symptoms?

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What is the prognosis (outlook) with Klippel-Trènaunay-Weber syndrome?

Most persons with Klippel-Trènaunay-Weber have an enlarged leg and they do relatively well without any significant treatment. It can be helpful to wear compression stockings to prevent venous pooling in the affected extremity (varicose vein management). However, some Klippel-Trènaunay-Weber patients do have considerable pain. Skin ulcers, infections and other skin problems can occur, but usually the treatment is conservative. Surgery is almost never needed.

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