Hirschsprung's Disease - Personal Experience

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What is Hirschsprung's disease?

Hirschsprung* disease (HD) is a disease of the large intestine that causes severe constipation or intestinal obstruction. Constipation means stool moves through the intestines slower than usual. Bowel movements occur less often than normal and stools are difficult to pass. Some children with Hirschsprung disease can't pass stool at all, which can result in the complete blockage of the intestines, a condition called intestinal obstruction. People with Hirschsprung disease are born with it and are usually diagnosed when they are infants. Less severe cases are sometimes diagnosed when a child is older. An Hirschsprung disease diagnosis in an adult is rare.

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See what others are saying

Comment from: Shazza, 25-34 Female (Caregiver) Published: August 29

My son was born with Hirschsprung's disease. He was operated on at eight months, had a colostomy for four years and then ileostomy for life as he was very ill. He is very small in height and of small structure. He has other medical conditions also. Main problem now is obstructions, for which he has to be hospitalized. But can't thank the surgeon and doctors enough.

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Comment from: Blessed, 25-34 Female (Caregiver) Published: September 29

I am the mother of a son born with Hirschsprung's disease. He was diagnosed at 2 days old when he failed to pass his first stool. He had the pull through surgery at age 3. He went through 3 years of weekly enemas and herbal laxatives before my husband and I agreed to the surgery. His surgery was a success. That was over 20 years ago, and he did not experience any growth problems. We are fortunate to have gotten early diagnosis and treatment.

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