SAPHO Syndrome - Symptoms and Diagnosis

Not ready to share? Read other Patient Comments

What symptoms did you experience with SAPHO syndrome? How was it diagnosed?

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the white triangle:

What are symptoms and signs of SAPHO syndrome?

SAPHO syndrome causes inflammation of joints with pain, stiffness, swelling, warmth, and redness. Joints affected can be spinal or away from the spine (peripheral joints) such as the fingers, wrists, or knees. Acne of the skin and pustules of the palms of the hands and soles of the feet are characteristic.

Return to SAPHO Syndrome

See what others are saying

Comment from: sara, 25-34 Female (Caregiver) Published: October 29

I suffered from SAPHO syndrome 2 years after delivering my first baby. I had neck pain, pustulosis on my hand, difficulty in breathing, and chest pain. I was lucky because I am doing excellent now after lots of tests and of course a colonoscopy. I am under Salazopyrine 4 tablets daily. I had my second baby and during pregnancy did not stop the treatment and I am doing great. Good luck everyone, be positive, do sports, and eat healthy food.

Was this comment helpful?Yes
Comment from: paula37643, 45-54 Female (Patient) Published: April 23

I just came from a doctor's appointment and he is leaning towards SAPHO syndrome with me. I am scheduled for a CT scan of my chest bone and upper ribs 1st, 2nd 3rd. It is extremely painful up under my clavicle and also my chest bone/plate feels bruised and in a flare, the pain is unbearable!

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!