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Reflex Sympathetic Dystrophy Syndrome - Share Your Experience

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What is reflex sympathetic dystrophy (RSD)?

Reflex sympathetic dystrophy (RSD) is a condition that features a group of typical symptoms, including pain (often "burning" type), tenderness, and swelling of an extremity associated with varying degrees of sweating, warmth and/or coolness, flushing, discoloration, and shiny skin. RSD is also referred to as "complex regional pain syndrome," "the shoulder-hand syndrome," "causalgia," and "Sudeck's atrophy."

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Comment from: vtilden, 55-64 Female (Patient) Published: March 11

I have had RSD for 21 years. I got it after arthroscopic knee surgery. Within 6 months I was diagnosed and began treatment at Baylor Medical Center. I went to three physicians seeking a cure. I finally gave up on a cure. Since 1998, I have been disabled by RSD and depression. Despite five years of intensive treatment, RSD is still with me today in both legs and feet. I feel blessed to still walk. I have learned that one can be in pain and not suffer. Also, one can have a semblance of a normal life with proper pain management and managing your life around RSD.

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Comment from: renee, 45-54 Female (Patient) Published: April 02

I had a bad trauma to my right ankle and leg and foot. Four surgeries injured my nerves. I could not find a doctor to really look at what was going on. I just knew something was not right. My foot would swell badly, hurt, and my nerves would shake all of the time. Finally, I was able to get on Lyrical, which helped. I still can't wear a shoe. Also, I broke my knee and was told that I have osteoporosis. A neurologist did a nerve study and found I have nerve damage. I have learned to try to live with it, but my quality of life is not the same. I get really depressed and suffer. It took a long time to get a diagnosis. I knew something was not right. I can't stand on it or sit for long periods. I have to elevate it as much as possible. I have stage 3 RSDS. It seems to have a mind of its own – it's always cold, red or blue, and there is no hair or nail growth.

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