Multiple Myeloma - Follow-up care

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What type of follow-up care do you or a relative receive for multiple myeloma?

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What support systems are available for multiple myeloma?

The International Myeloma Foundation (IMF) can provide caregivers and patients information about many aspects of this disease. IMF's phone number is 1-800-452-2873. There are local, state, and national support groups for multiple myeloma.

Return to Multiple Myeloma

See what others are saying

Comment from: davebrik, 65-74 Male (Patient) Published: October 05

I had a constant itching below my left shoulder blade for about a year. Dermatologist told me is was nostalgia paresthetica; nerve impingement. MRI showed collapsed side of T6 vertebrae. Biopsy after kyphoplasty (worked great) showed multiple myeloma. I had 25 radiation sessions on spine and no problem for 15 months and then I broke my humerus in multiple places. I am now in fourth month of chemotherapy with Velcade, Revlimid, and dexamethasone. Chemotherapy is not bad but I have usual tingling pain. Oncologist wants to do autologous SCT (stem cell transplant). I wonder if side effects may be worse than the benefits!

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Comment from: Pedro, 55-64 Male (Patient) Published: February 11

I was diagnosed with multiple myeloma in 1998 and after chemotherapy had an autologous stem cell transplant. I injected Interferon daily for 8 years when I came out of remission. I then started taking 25 gm of prednisolone every second day and after 6 months was back in remission. Three years ago I had a positive blood test and the paraprotein level has slowly come down to 8. It was 65 upon first diagnosis. They have taken new stems cells in case I need another transplant down the track.

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