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Scleroderma - Describe Your Experience

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What is scleroderma?

Scleroderma is an autoimmune disease of the connective tissue featuring skin thickening, spontaneous scarring, blood vessel disease, and varying degrees of inflammation, associated with an overactive immune system. Autoimmune diseases are illnesses that occur when the body's tissues are attacked by its own immune system. Scleroderma is characterized by the formation of scar tissue (fibrosis) in the skin and, potentially, the organs of the body. This leads to thickness and firmness of involved skin.

Scleroderma is classified as localized or widespread (systemic sclerosis with a tendency to affect internal organs). Systemic sclerosis is further divided into limited and diffuse based upon the extent of skin involvement.

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See what others are saying

Comment from: slick1, 55-64 Female (Patient) Published: November 18

In 1999, I was diagnosed with eosinophilia fasciitis. My doctor had me taking Remicade, which worked very well until I started having liver problems. I had a biopsy performed on the muscle, which showed that I had systemic scleroderma. I am now taking Cellcept. I have been taking it for only four weeks, but already my skin is looking better, and I am being told by friends and family that I sound and look as if I feel better. The Cellcept makes me very tired, but we will know more after it completely gets into my system.

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Comment from: kelticlady, 45-54 Female (Patient) Published: November 29

I am 49 years old right now. I was diagnosed with scleroderma in 1992. Two years later, I was in the hospital with congestive heart failure. I really have not progressed much since then. I do have trouble with my hands and arms. They do not straighten out very well. I take a series of medicines: Cuprimine, Captopril, and Diltiazem. I do suffer emotionally and from depression. That has been the worst for me. I do feel lucky to be here today, and I try to be thankful for the time I have been given. I always get my rest.

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