Chronic Fatigue Syndrome (cont.)

"There was a sense of relief because finally there was a reason for all I was experiencing," Jones says. "People would constantly ask what was wrong with me, and I felt like I was going crazy. I never guessed it could be one particular illness that could be causing it all."

Jones started on a long journey of medical tests in an effort to get better. She went through years of disappointment, having MRIs taken, going through blood tests and a thyroid test, and was put on a series of different medications and herbs. She put time, money and effort into seeing naturalists, visited mainstream doctors, and went through a series of allergy injections in an effort to find an answer.

For about three years she was on a strict allergy diet where she had to exclude milk, sugar, corn, and wheat from her diet, and also had to remove all dust particles from her house.

"My diet just became more and more limited," Jones says. "I was basically eating meat and salad, wheat-free pasta, and wheat-free, milk free cookies. My diet was very, very plain."

Chronic fatigue syndrome symptoms

Although she followed her diet strictly, she still felt tired. Then in 1998, five years after her initial diagnosis with chronic fatigue syndrome, the dizziness started.

"I have constant dizziness," Jones says. "When I look at things, everything is always moving."

Jones sometimes has dizzy spells that are worse than others where she feels off balance and has to grab onto something. Her symptoms are sporadic in that she often can go a few days without feeling severely dizzy, but then experiences several dizzy spells in a short amount of time.

"With chronic fatigue syndrome symptoms come and go," Jones says. "I also have muscle aches, headaches, sore throats, and TMJ to name a few," she said. "I sleep with a night guard to help prevent my jaw from locking while I sleep, although it still happens from time to time. My teeth will ache, and I even went a whole year unable to chew on one side of my mouth."


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