Gluten Intolerance: Against the Grain (cont.)
Celiac disease, which also goes by the names gluten-sensitive enteropathy, nontropical sprue, and celiac sprue, is a genetic disease. This means it can run in families. And it has far-reaching effects.
"Celiac disease is not just a disease of the gut," says Shelley Case, B.Sc. R.D., nutrition consultant and author of Gluten Free Diet: A Comprehensive Resource Guide. "It's a multi-system, multi-symptom disease with serious implications."
Celiac disease is linked to malnutrition that can lead to anemia, osteoporosis, depression, behavioral problems, and stunted growth in children, among other problems. People who have celiac disease may also have other autoimmune conditions, such as type 1 diabetes and rheumatoid arthritis.
Celiac Disease: An Unrecognized Problem
Until fairly recently, celiac disease was considered rare among Americans. In 2003, the results of a large, multi-center study published in the Archives of Internal Medicine found celiac disease in one in 133 Americans. Among those with parents, siblings, or children with celiac disease, up to one in 22 people in the study had it.
As many as three million Americans have celiac disease. Most of them don't know it, largely because celiac disease can be difficult to nail down.
"It takes most adults about 12 years to get a definitive diagnosis of celiac disease," says Michelle Pietzak, MD, a pediatric gastroenterologist, professor of pediatrics at the Keck School of Medicine of the University of Southern California, and one of the authors of the landmark study.
Gluten Intolerance: Searching For Answers
If you think you suffer from celiac disease, resist putting yourself on a gluten-free diet. At least not yet.
"When you go off gluten, your gut starts to heal, and you won't have the markers in your blood or your gut tissue that indicate celiac disease," Case says.
Instead, see a doctor for testing and a firm diagnosis. Your doctor usually orders blood tests to help diagnose celiac disease. The two most frequently ordered tests are the endomysial antibody and tissue transglutaminase antibody tests.
If antibody tests suggest celiac disease, you'll need to confirm the diagnosis with a biopsy of your small intestine. The appearance of Dermatitis Herpetiformis (DH), an itchy, blistering skin rash is also a strong indicator of celiac disease.
Adapting to a Gluten-Free Diet
You absolutely must avoid gluten if you have celiac disease. That's the only way to halt the disease's symptoms, heal existing villi damage, and prevent destruction of the small intestine. Even if you have only a mild reaction to gluten, you may decide to keep this protein out of your diet.
But gluten-free living is no mean feat. That's why it's important not to go it alone. You may think you're doing a good job of getting rid of gluten, but you may not be aware that gluten lurks in a number of processed foods, including: