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Hyperkalemia - How Was Diagnosis Established

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Comment from: bevvs, 65-74 Female (Patient)

I spent a whole year just not feeling good. I was so fatigued I could only stay awake at most three hours at a time. All I wanted to do was sleep. Also I had muscle ache and weakness, loss of appetite, and I filled up with an abnormal amount of fluid which caused an abnormal amount of weight in a very short time. My doctor asked why I wasn't losing weight if I had no appetite and I pulled up my pants legs and showed him how swollen my legs were. He then said I was filling up with fluid and had my blood tested which showed a dangerously high level of potassium. I have since been put on various medicines and to date my potassium level is above 6.0. I still am very tired and am having heart palpitations. The doctor (a cardiologist) has just changed my medicines again. Hopefully I will soon start feeling better because I am starting to get very depressed about the whole thing. Published: May 13 ::

Comment from: 35-44 Male (Caregiver)

My son has not been diagnosed as such but has been hospitalized with severe edema, six super bugs and venous statis disease, for l6 months. His doctor put him on very limited fluids and he dehydrated and his potassium went to 6.7 it has at other times gone to 7.6 previously. His symptoms are the exact ones listed. I was told his kidneys were shutting down, he has become extremely nauseated, hands had become useless, this has happened on other occasions when his potassium levels went very high. His speech became really slurred. I questioned all of these symptoms; my son actually at the onset told me he had a heart attack. Now the first heart monitor has been put on him. His ratings for CHF % was at l31 on the 13th of April. I got lab reports myself and started reviewing them. I feel because he is a medicare medicaid patient that he is not receiving the care he should be getting. From the beginning of this period he is having difficulty eating: coughing, choking, chewing all signs of maybe a small stroke. He says his right hand is weaker than his right. I noticed right away he started using his left hand. Published: April 23 ::

Comment from: Jilllee, 45-54 Female (Patient)

I was diagnosed with Cushing's syndrome in 2006. I had my left adrenal gland removed and felt better for two months. I then started having Cushing’s syndrome symptoms again and had my right adrenal removed in February of 2008. Since surgery, I have been hospitalized three times with hyperkalemia. My potassium levels were 10, 8.8 and 8.0. I had to have dialysis five times and the last time I was hospitalized, I crashed twice. Since then, my endocrinologist can't figure out what level of prednisone to put me on, and I feel like there is no end to feeling sick. Published: March 06 ::

Comment from: Larry, 55-64 Male (Patient)

My potassium level reached 7.5 (severe), and I had almost constant weakness in my legs. I could barely walk. I had a recurring nauseated feeling in my stomach. I had no energy accompanied by an overall exhausted feeling. I had no appetite. Hyperkalemia was detected through a blood test. Published: March 06 ::

Comment from: romo, 55-64 Male (Patient)

I had no symptoms at all with my hyperkalemia. I had a liver transplant, so I go and have blood drawn every week. I went and had blood taken, and they asked me to stay for the results, so I did. When the doctor called me in, she told me she was admitting me into the ICU. I asked why. I said I feel great, in fact, the best since my transplant and I was ready to go for my eight-mile walk I do four times a week. She told me about my potassium level and said it was high. If it wasn't for my blood work, I would not have known. Published: April 15 ::

Comment from: 45-54 (Patient)

I had been taking several medications for high blood pressure, including a diuretic, Norvasc 10 mg, metoprolol, and an ACE inhibitor. I had a second episode of irregular heartbeat and went to hospital where I was found to have hyperkalemia. My symptoms were/are tingling/numbness in lower extremities, sweating, and a slight shortness of breath. Published: March 06 ::

Comment from: 45-54 Male (Patient)

I woke up one morning, and I had a loss of balance and was unable to stand without leaning or holding onto something sturdy. I had weakness in my lower torso and my hands. A blood test determined I had hyperkalemia. I was told to stop taking my naproxen and lisinopril. I started taking a hydrochloride medication immediately to counteract the potassium in my system. Published: August 06 ::

My balance became so badly messed up, I couldn't walk without members of my family holding me up. After falling while trying to walk 6 feet, I went to the hospital where hyperkalemia was diagnosed; the result of a medication I had been given. Published: July 02 ::


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