Patient Comments: Scoliosis - Diagnosis

How was your scoliosis detected and diagnosed?

Comment from: Tandie, 25-34 Female (Patient) Published: September 30

I started having pain when I was in the fifth grade and was aged 10, in 1996. I used to feel tired and breathing was slightly a challenge especially in the winter. At this time, I didn't notice the abnormality. My mom noticed it beginning 2004. I had x-rays taken and that`s when I got to know the problem was scoliosis. It worsens as one grows. I am now 28 years old and everyone can see the abnormality now. I can't wear heels for more than 2 days because I spend some days after experiencing back pain.

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Comment from: Yellowcast74, 35-44 Female (Patient) Published: July 08

I was in the 7th grade when my scoliosis was detected during a routine school screening. My curvature was so bad that if I had not gotten surgery when I did (my spine was curved toward my chest) it would have affected my breathing which would have led to other health issues. I had to wear a body cast the entire summer of 88 in the south. It was removed right before I started high school but with that cast I still continue to live my life, like run track and hangout like teenagers do. I had a great support system, now today I have a 17 year old son who has been detected of having scoliosis. His is curvature is a little different from mine but when detected he was already at 37 degrees. They have put in a brace that he very seldom wears. I am not sure how this will affect him in his adulthood but since he wants to be hardheaded and not wear the brace there really isn't anything I can do. He does not have much time left to grow and once he stops growing however his curvature is how it is going to have to stay I think.

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Comment from: whitewash1, 45-54 Female (Patient) Published: May 11

I was recently diagnosed with scoliosis due to great pain, plus a neck injury due to work. I am a tower crane operator.

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Comment from: Cyntana, 55-64 Female (Patient) Published: July 31

I hurt myself while moving into a new house. I thought I strained my back and went to a chiropractor to get it worked on. The x-rays showed a curve in my lower spine, my spine is centered between my navel and left hip and a vertebra in my upper back has slipped halfway off of one below it, causing a great deal of pain in my rib cage, as well as the horrible pain in my lower back. That was four years ago, my doctor has yet to acknowledge anything except bulging discs in L4 - S1. He tells me I need to exercise; I told him it was extremely painful for me to twist and turn my upper body, and that walking makes my hips and back hurt. If I try to take his advice and walk, I wake the next morning unable to even roll out of bed. MRI have shown the presence of scoliosis, but no diagnosis as yet - four years and two MRIs later.

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Comment from: Julie, 55-64 Female (Patient) Published: April 14

My scoliosis was discovered when I was 11 years old. My Mama was making me a dress and thought she cut the pattern wrong when she was unable to close the zipper. I was put into a Milwaukee brace 24/7. My curves were 65 and 35 degrees. I even wore body cast in the winter months in hopes of better correction. At the age of 15 I had to have surgery, 11 fusions in the thoracic region with placement of 2 Harrington rods; this was in 1974. In 1976 the rods were removed, things were stable at that time, I had no pain and I was released from my doctor. I had a wonderful doctor and do not blame him for anything. Well in 2012 I started having sacroiliac (SI) pain but didn"t think much about it. I got worse, after several x-rays and doctors, I still have severe scoliosis and have lost what correction I obtained with surgery. I have rheumatoid arthritis and spurs encroaching on my spine, osteoporosis, and lots of pain now. I am unable to work and have been told by my doctor that surgery is no longer an option for me as well as injections for the pain. So at this time I"m on pain medications and unable to work. Everyday household chores are impossible. Maybe one day there might be some new options to explore, but for now I take one day at a time.

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Comment from: nick, 25-34 Female (Patient) Published: July 27

I was diagnosed with scoliosis as a young child in a routine doctor's office visit. I was a happy kid who had been singing since she was four. I was also a child gymnast and I loved it. My parents planned on keeping me in the program I was in for years to come. After some time, the diagnosis created such tension in my family that it was decided it would be better that I quit as one of the beliefs was that all the twisting and bending could have actually caused the curvature. I was told to get the rod surgery but my Dad refused to have his little girl undergo surgery. Instead I was put into the Boston brace. But I had to say goodbye to the gymnastics program. Scoliosis had felt like a captivity for me in many aspects. Putting on your own brace is very time consuming so every day, one of my family members had to put it on. I felt incapable. The back brace would dig into my young skin and cause deep, bloody, stinging, red sores and cuts from underneath my arms to below my navel. Bending down in school to pick up a pen on the floor was impossible to do painlessly. Going to the restroom was too much of a nuisance so my bladder suffered for hours on end. The pain was a pulsating pain that was always there. It didn't stop in my back. I had severe migraines that would cause nausea, even sporadic numbness from time to time in my hands or I would experience pins and needles. I was also diagnosed with a neurological disability stemming from scoliosis. One side of my body is not as receptive as the other and even one of my eyes do not have as clear a vision as the other one. The only treatments that greatly help me feel better are alternative treatments which are not funded by my insurance. Scoliosis is not widely recognized as a disability, and I hope that changes. Scoliosis got me into yoga which I love and does help to decrease the daily pain.

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Scoliosis - Treatment Question: What was your scoliosis treatment?
Scoliosis - Signs and Symptoms Question: Describe the signs and symptoms associated with scoliosis in you or your child.
Scoliosis - Causes Question: What do you suspect the cause of scoliosis was in you or your child?
Scoliosis - Experiences Question: Please describe your experience with scoliosis.

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