Patient Comments: Scoliosis - Treatment

What was your scoliosis treatment?

Comment from: selvi1209, 13-18 Female (Patient) Published: March 06

I'm 17 years old and last year around my birthday I started having acute pain all over my body. I went to my family doctor he just told me that I had bone inflammations at my rib cage and gave me medications for a three months long treatment. Three months later the pain was still acute and I ended up with have difficulties to walk and went to see a new doctor. He told me that I had fluid accumulation in my left knee and that I had to have injections done for the following three weeks, which I did. In the end of those weeks I had 15 injections done in all. I went to see a new doctor and he diagnosed me with osteopenia and scoliosis and that they were the cause of everything that I have been suffering from. Now all I can hope of is that my conditions improve enough to help me take my school finals.

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Comment from: milakay, 19-24 Female (Patient) Published: January 25

I am 19 years old and I have congenital scoliosis. When I was two, I had my first surgery, where I think, my doctor removed a bone from my neck. He told my parents to wait to do my second surgery at the age of 14. After that, I wore a neck brace as well as a torso brace for a year, then just a torso brace until I was 9. My parents went to a scoliosis convention and met with Dr. Newton in San Diego - he said that if he could perform the surgery he would. After a few weeks, I was scheduled to have my second surgery. What they did was remove small portions of intervertebral discs and fused them along with a small metal rod and screws to my spine. I remained in the hospital for two weeks and took some more time to recover. I could not physically exert myself and did not take regular P.E. until 9th grade. Before December 2011, I was under the impression that I was doing fine, and I am. But, after a visit with the doctor recently, I was informed that the top portion of my spine is at a 48 degree curve. This is because the area that was treated was at the top of my spine at the age of 9, but ten years later, I have grown some and the part above that treated has grown crooked. I am at a stage where I could go with the surgery or wait 5 years to see how much it has progressed. I am debating whether to do the surgery now or later, seeing as how many of my school plans will be distorted were I to do it this summer, but it seems that this summer is the optimal time to do it.

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Comment from: candystrip32, 45-54 Female (Patient) Published: November 02

Hi, my name is Kathryn Sims I am a candidate for Marfan's Syndrome/scoliosis. Which I am in my second stage of scoliosis. Recently, I just found out that I carried disease when I was at the age of 13. I didn't have any symptoms until I got in my 20's. Now, at age 48 I have all the signs and symptoms. I have been fighting for my disability since 1997. And still fighting for it up until 2011. I get so angry at times because no one seems to understand what great pain I am in. I have no insurance and can't get any money for lack of work. The pain is unbearable. And it keeps me from working. I have a lawyer right now I am just waiting on a court date. Which now, I have been denied 5 times threw Administrative Law. I have been through several doctors who has seen how my back has form into curvature of the spine meaning scoliosis which is moderate right now. Any suggestions will greatly be helpful. I am a voice advocate which I want the world to know about this disease. Too many people don't know about this disease. Although, there is no cure. You can still be tested at the Mayo Clinic. Thanks for listening. I don't know what us to do at this point. I need help is there anybody out there. Please respond.

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Comment from: Cat, Female (Patient) Published: March 06

I was in third grade when I was at a check up at my doctor for my asthma and he noticed a curve in my spine. I then went to the Shriners and they diagnosed me with about a 15 degree curve at the top of my spine between my shoulder blades. I started wearing a night time brace in fifth grade to correct my curve. I've also had 4 MRIs up to this point because I have a syrinx (pocket of liquid) in my spine and they monitor it to make sure it isn't causing my scoliosis and wouldn't have to be removed because it could cause serious nerve damage. I'm now 15 and my spine is at about a 48 degree curve but don't ever feel back pain so they are thinking of not doing the surgery since I'm almost done growing and he said the surgery would mostly be to fix aesthetics but the only noticeable thing is my shoulder blade that slightly sticks out and my shoulders tilted. I will only wear my brace for 6 more months and then go for another MRI but for now all is well. I also dove for 8 years starting in third grade and they said that all the exercise would help a lot.

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Comment from: Rachel Lynn, 13-18 Female (Patient) Published: January 14

I was diagnosed with scoliosis around the age of 9. It progressed rapidly and I am now 14 and wearing a back brace at night. My curve degree is about 35-40, but might be more since my last visit was 3 months ago. I have had some really bad back pain around the area where my curve is, and I am getting it checked out soon. I like to read about the condition I have and get information on ways to relieve my pain, and I think this site definitely helped me out.

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Scoliosis - Diagnosis Question: How was your scoliosis detected and diagnosed?
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