Patient Comments: Scoliosis - Treatment

What was your scoliosis treatment?

Comment from: ladyrebel, 55-64 Female (Patient) Published: March 24

My doctor sent me to the hospital, and they will draw blood every week for a month and then assess where we are, and if my blood count is down. I have polycythemia and my body is making too many red blood cells. Yesterday, they could not draw blood because my count was too low. The blood count had to be over 16, mine was 15.8.

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Comment from: Lyn, 45-54 Female (Patient) Published: September 27

In 1994 at the age of 35 I had surgery to correct my progressive scoliosis, which was then at a degree of 98. The surgery consisted of 2 eight hour operations, 5 days apart, i.e. 16 hours of surgery! The first op was to do preparation which consisted of fusions and the second was to insert instrumentation, consisting of rods and screws. Bone was removed from my hip to fill the spaces between my vertebrae once my spine had been straightened. Unfortunately, it was only straightened to 65 degrees for fear of over correcting but at least the curve has now been stabilized and will not deteriorate any further. After 17 of having a trouble free back, I work out regularly at the gym lifting weights and am as fit as a fiddle, thanks to the successful surgery.

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Comment from: carrie, 45-54 Female (Patient) Published: December 08

I went into a Milwaukee brace at age 6 for scoliosis; wore it 24/7 for ten years. I had spinal fusion with Harrington rods in 1976. My fusion did not heal properly.

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Comment from: anagha, 19-24 Female (Patient) Published: September 03

I was very happy to know my scoliosis was at an earlier stage. And my doctor preferred me to wear a brace. It was too big and horrible to wear. At last I went to another doctor and he gave me another kind of brace which was user friendly.

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Comment from: Mags, 55-64 Female (Patient) Published: May 02

I am 64 and was diagnosed with scoliosis only two years ago despite attending doctors, physiotherapists and chiropractors for years because of pain in my neck, shoulders and back. Cooking is literally a pain as is doing any craft, or house work. I cannot carry a handbag for any length of time. There are times when the only relief is to lie flat on the floor which can be rather embarrassing if I am at a craft convention. I was introduced to the new, young osteopath who diagnosed my condition and assured me I was not a baby for feeling depressed about the pain. It's the first time anyone has said, "No wonder you are in pain, the amount of work your muscles are doing to keep you facing forward". I now see him once a month, and while it is not a panacea, it does give me relief for a reasonable period of time, so long as I am careful.

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Comment from: Mina, 19-24 Female (Patient) Published: October 15

I was suffering from Scoliosis 35 degree, but I started swimming, drinking milk and using calcium foods. My Scoliosis has changed to 20 degree now, it shows swimming and drinking milk was useful for this disease.

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Comment from: shortstack, 13-18 Female (Patient) Published: November 13

I was 14 when I was diagnosed with scoliosis. My grade 8 teacher called my parents and suggested I get a check up. At the doctors we found out that I had a 44 degree curve in my upper back. We met with a specialist and he said he wanted to keep an eye on it. By the time I reached high school my curve had progressed to over 50 degrees. The surgeon decided he wanted to fix it surgically since it had progressed so quickly in such a small time frame. I had been on a waiting list until my third year of high school. I finally had the surgery a month before my 17th birthday. I was extremely nervous, but I honestly think it was the best decision I made. I feel so much better and I am so much more confident because I look better. It's been 8 months and I do not regret the choice I made to have the scoliosis correction surgery.

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Comment from: milakay, 19-24 Female (Patient) Published: January 25

I am 19 years old and I have congenital scoliosis. When I was two, I had my first surgery, where I think, my doctor removed a bone from my neck. He told my parents to wait to do my second surgery at the age of 14. After that, I wore a neck brace as well as a torso brace for a year, then just a torso brace until I was 9. My parents went to a scoliosis convention and met with Dr. Newton in San Diego - he said that if he could perform the surgery he would. After a few weeks, I was scheduled to have my second surgery. What they did was remove small portions of intervertebral discs and fused them along with a small metal rod and screws to my spine. I remained in the hospital for two weeks and took some more time to recover. I could not physically exert myself and did not take regular P.E. until 9th grade. Before December 2011, I was under the impression that I was doing fine, and I am. But, after a visit with the doctor recently, I was informed that the top portion of my spine is at a 48 degree curve. This is because the area that was treated was at the top of my spine at the age of 9, but ten years later, I have grown some and the part above that treated has grown crooked. I am at a stage where I could go with the surgery or wait 5 years to see how much it has progressed. I am debating whether to do the surgery now or later, seeing as how many of my school plans will be distorted were I to do it this summer, but it seems that this summer is the optimal time to do it.

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Scoliosis - Diagnosis Question: How was your scoliosis detected and diagnosed?
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