Patient Comments: Scleroderma - Symptoms and Signs

What are your scleroderma symptoms and signs?

Comment from: sew1088, 45-54 Female (Patient) Published: April 08

I am 49 years old was diagnosed with Systemic Sclerosis about seven years ago, started with leathery patch on left leg tightness on face arms and hands then went to Reynaud. I am currently doing better however I am still tired most of the time and have muscle and joint pain and having minor lung problems. I am happy to wake up everyday and enjoy my family and life. Please do not feel alone because you're not.

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Comment from: Gooser, 65-74 Female (Caregiver) Published: March 30

My wife was diagnosed with scleroderma in 1994. During the last year or so, she has had parts of toes and fingers amputated. Several weeks ago she had the toes on her right foot amputated. Just last week she had the toes on her left foot amputated. Tomorrow, she has her left foot amputated. Not sure what to expect from here on out.

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Comment from: Meisha, 25-34 Female (Patient) Published: January 19

When I have a scleroderma flare up, it usually affects my fingers. I develop very hard nodules on the tips of my fingers that are very painful to touch. Sometimes I develop yellow crusty sores on them, and I have to take antibiotics to heal it.

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Comment from: geoff, 75 or over Male (Patient) Published: December 10

I have had Scleroderma for about 5 years. It affects my skin, mouth, etc. I now have a swollen ankle that could be thrombosis.

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Comment from: curemorphea, 7-12 Female (Caregiver) Published: August 17

My daughter was diagnosed with localized Scleroderma Morphea over 12 months ago. She has a rather large scar on her right thigh. She is currently taking Plaquenil and methotrexate which does seem to be helping, but I am not happy about giving my daughter these toxic drugs. She was also taking prednisone for about three months.

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Comment from: matilda, 55-64 Female (Patient) Published: April 12

Hi, I have scleroderma since I was 6 years old. I am now 60 years old. Nobody knew anything about this illness then, it was quick and devastating. In a few months I took over my right leg and foot, right arm and hand, inside of left arm and thumb, patches over my liver and heart, and then it stopped. I have never taken any medicine. I am a survivor. I live a fun life and try to laugh a lot, I am not rich on the contrary, but it's made me who I am and I feel good about myself positive thinking!

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Scleroderma - Describe Your Experience Question: Please describe your experience with scleroderma.
Scleroderma - Treatment Question: What kinds of treatment, therapy, or medication have you used to manage symptoms of scleroderma?
Scleroderma - Types Question: What type of scleroderma do you have?

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