Patient Comments: Schizophrenia - Describe Your Experience

Please describe your experience with schizophrenia.

Comment from: pp1, 19-24 Male (Patient) Published: August 01

With schizophrenia, I am always feeling someone is watching me judging me. And looking at my face with anger.

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Comment from: Chasity, 35-44 Female (Caregiver) Published: April 17

I am 17 years old and have been seeing my mother deal with schizophrenia since she was my age. She has been in and out of the hospital multiple times but will not change her medication from clozapine. She"s a paranoid schizophrenic. I"ve been looking into Invega Sustenna.

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Comment from: vivistar70, 35-44 Female (Patient) Published: October 18

I am 43 and have the voices of demons, people and entities present with my schizophrenia, as well as dead people and animals. They are positive and negative. They often say, "Respect your space" when I try to access them for conversation or free association topics. All the people, entities, dead, animals, and I are victims, if we say we are. I have a mental Tourette's effect of bad words because if I say I have something then I do have it because I cannot make any negative observations. The effect is very intense but it is being managed with the following medications I am currently taking: Latuda, Topamax, and Ambien.

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Comment from: moonchild, 35-44 Female Published: October 09

My 39-year-old son was diagnosed with paranoid schizophrenia in July of 2002 at our state mental hospital. He started being scary after 9/11/ and "got messages" that told him he was sent to save mankind. He had a terrible temper with cursing and violence toward his dad. On his second trip to the mental hospital in 2003, they were finally able to get him on Risperdal, which helped but raised his blood pressure very high. After four years, the psychiatrist switched him to Prolixin, an old drug that seemed to work better for him. He will never work again and has lost everything but his house, where he spends his days and nights alone, chain-smoking, like a recluse. He does visit his three daughters and has a cordial relationship with his former wife. I miss my youngest son the way he was before the “evil” took him away, and I cannot find anyone on either side of the family who had the disease.

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Comment from: denise62, 65-74 Female (Caregiver) Published: October 06

My mother is 67 years old. She is having a lot of these symptoms. I have not taken her to the doctor yet but we go soon. She is on a lot of medicine including morphine. She was using the fentanyl patches. She was putting the patches in her mouth. The last time this happened she didn't come all the way out of it, after it wore off. Since then which has been about 3 weeks she has all these signs of schizophrenia. I read that drug abuse couldn't cause this disease but I'm not so sure about that. She thinks her mother which is deceased and her mother's best friend who is not deceased is living in her bedroom. She says they are very little and they stay in pillows, blankets, and drawers. They don't want anyone else to see them or hear them talking. My mother asked her mother how she came back from the dead. She said her mother said she did not really die and the doctor made a mistake when he pronounced her dead. But she is embalmed and she crawled out of a whole in her grave and came to my mother's room. She thinks her mother's friend came about 3 or 4 days later. My mother talks to both of them all the time. Other than this behavior she seems to be fine. She talks with normal sense the rest of the time. She has fears of other people showing up that she don't know. I hope the doctors get this right and don't just say she has dementia. Or is it all pretty much the same?

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Comment from: Carolyn, Published: September 17

My brother, who is now 67, has been schizophrenic for many years. He has been on Zyprexa for a long time now and it has improved his behavior tremendously. He still has very delusional thinking, even on the Zyprexa. For instance, he still believes that previously, when he was not on medications, he heard the voices of his spirit guides, who were assisting him when he was being attacked by wizards and demons. He believes that several people at his day program have strong auras that he can sense, and he believes he can communicate telepathically with those people and get a telepathic response (consisting of a "feeling"). In fact he believes that these people at the day program are actually Lemurians (a mythic race that inhabits tunnels under Mt. Shasta in California). He still believes all this, but he doesn't act on it in any destructive way. His behavior is much better, and he no longer hears the voices of the spirit guides. He really isn't "normal" but his interactions with other people are much better.

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Schizophrenia - Treatments Question: What treatments have been effective for your schizophrenia?
Schizophrenia - In Children Question: What were your child's schizophrenia symptoms? Please share your story.
Schizophrenia - Symptoms Question: Describe the symptoms associated with schizophrenia in you, a friend, or relative.

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