I began having raised area to my skin on my legs. My doctor didn't notice anything. I then began to lose weight due to being unable to swallow my food. I lost 80 lbs in less than 3 months. I was sluggish and tired all the time, couldn't concentrate, and slept all the time. I have not been able to work due to weakness and numbness all over. Again the doctor said I was depressed and I had a sinus infection. It was when I went to get my annual eye exam that my eye doctor noticed a difference in my eyes. When my eye sight became blurred, I went back and my optic nerves were swollen so much so that my eyes were bleeding. I had an MRI and the next day woke up with facial paralysis to my left side of my face. Less than 6 weeks later, I had a spinal tap done and the next day woke up and the right side of my face was paralyzed. I was just diagnosed with Sarcoidosis this weekend. I was going blind also. I am scared because I don't know what is going to happen next.

I stared having pain my 10th grade year of high school and I started losing weight like crazy. Within one week I lost 15 pounds. I was 16 at the time, it wasn't till I was 18 when they finally told me what it was. I had shortness of breath (splinting) and stared to sleep all the time and get sick very easily. I was in and out of the hospital my 11th grade year. Finally I found a doctor who know what I had! The other doc. said I had to get surgery to see what it was but thankful I didn't have to but they did say some time down the line I might have to.

I was diagnosed with sarcoidosis at the age of 16. I am of Nordic background. My kidneys started to bleed and I was holding fluid in my tissues. This may have occurred at the same time as the sarcoidosis I was very tired and would be out of breath climbing the stairs. I developed several red raised areas on my skin. I felt down at this time. I was put into the hospital for five weeks and after an x ray they said my lungs looked like a snowstorm. They diagnosed this illness from a biopsy they took of the red mark on my arm. I was put on decedron a cortisone drug. I remained on that for a year and the symptoms went away except for a little scar tissue in my lungs.

Since I was young I have had shortness of breath, and doctors never thought it was anything so just left it alone. As I got older I started getting heart palpations. I went to a doctor for something unrelated and happen to mention it and he suggested an X-ray which showed a spot on my lung. With further testing and a lung biopsy they found it was sarcoidosis. After seeing a specialist he treated me with advair and steroids. I haven't had issues for a few years.

I am 48 years old. I was diagnosed 1 & 1/2 years ago with sarcoidosis through a lung biopsy. I started taking prednisone about three months ago which has helped me tremendously, enlarged lymph nodes went back to normal rash on face improved, started taking 60mg has been reduced to 30 just last week starting to not feel right since. I now have pain in my legs, my since of taste has changed, tingling in lips, legs, hands and feet also have to take sleeping every night.

My first symptom of Sarcoidosis was a severe metallic taste for around six weeks this was followed by a total loss of taste, reduced saliva production and night sweats. Severe right kidney pain, extreme fatigue, loss of balance, rapid weight loss, rapid heart rate, very low blood pressure and bilateral facial palsy. Weakness in legs, hands, arms and back, unable to walk without assistance. Tear production ceased.