Sarcoidosis (cont.)
Living with sarcoidosis
The cause of sarcoidosis still remains unknown, so there
is at present no known way to prevent or cure this disease. However, doctors
have had a
great deal of experience in management of the illness. It should be noted that most people with
sarcoidosis lead
normal lives.
If you have sarcoidosis, you can help yourself by following
sensible
health measures. You should not smoke. You should also avoid
exposure to
other substances such as dusts and chemicals that can harm your
lungs.
Patients with sarcoidosis are best treated by a lung
specialist or a
doctor who has a special interest in sarcoidosis. Sarcoidosis
specialists
are usually located at major research centers.
If you have any symptoms of sarcoidosis, see your doctor
regularly so
that the illness can be watched and, if necessary, treated. Regular checkups with the doctor are important even if there are no symptoms present. Eye examinations by an eye specialist can detect early eye inflammation from sarcoidosis.
Although severe sarcoidosis can reduce the chances of
becoming pregnant, particularly for older women, many young women with
sarcoidosis have given birth to healthy babies while on treatment. Patients planning
to have a
baby should discuss the matter with their doctor. Medical
checkups all
through pregnancy and
immediately thereafter are especially important for sarcoidosis patients. In
some cases, bed rest is necessary
during the last
three months of pregnancy. In addition to family and close friends,
a number
of local lung organizations, other nonprofit health
organizations, and
self-help groups are available to help patients cope with sarcoidosis. By
keeping in touch with them, you can share personal feelings and
experiences. Members also share specific information on the
latest
scientific advances, where to find a sarcoidosis specialist, and
how to
improve one's self-image.
Information above was
contributed, in part, by the generosity of National Institutes of Health.
Next: Sarcoidosis At A Glance »
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