Featured sarcoidosis patient discussions on experience with disease
"I am a 51 yr old black woman and I have sarcoidosis. I was misdiagnosed initially for 3 yrs. (1981 - 1984) my case was severe. At 24 yrs old I had sarcoid in my bones (from head to toe), my skin, and nasal passages. I was treated with prednisone for 20 years. At 24 yrs old, my joints were brittle and had holes. Granulomas formed on my face and I have had 3 surgeries on my tear ducts (both eyes). I happy to say my bones have rejuvenated, (medically impossible), I have flawless skin, and I can breathe thru my nose. I have been off prednisone to for 3 yrs. I?m now a beauty consultant and I feel good!
"I am a 52 year-old male. I have extreme shortness of breath on exertion, constant fatigue, night sweats, skin lesions, etc. I was diagnosed with sarcoidosis in 1998 after two years of tests, X-rays, CT scans, lymph node biopsies, you name it. I finally found a specialist who was able to figure out what was going on. He put me on Advair, prednisone, and an Albuterol inhaler. The prednisone went from declining dose regimens to a constant 25 mg per day to control my lung and skin lesions. After two years of this, I developed steroid diabetes and gained a lot of weight. He suggested the Cleveland Clinic Sarcoidosis Center. They now have me off the prednisone. I am now taking methotrexate, which seems to be controlling the disease."
"I am have been suffering from sarcoidosis for the past 6 years that I know of. It was discovered from a skin lesion, which I originally thought was a severe case of acne. I visited a dermatologist and was diagnosed with this dreaded disease. Since then I have encountered arthritic pain in most all my joints. I have broken two fingers and an elbow bone (how do you break an elbow bone? -I don't know but I did) while working as a utility worker: All of which are directly related to the sarcoid. Currently, I am taking 5 prescription medications for the disease. My Bones are deteriorating, rapidly it would seem, and I am only 42 years old. If there any remedies that anyone is aware of, I would be very interested in knowing about them. "