Patient Comments: Sacroiliac Joint Dysfunction - Experience

Please describe your experience with sacroiliac joint dysfunction (si joint pain).

Comment from: Dearrosie, 65-74 Female (Patient) Published: November 08

I was recently diagnosed with Spondylitis (Arthritis) and had minimally invasive procedure laminectomy at L4 & L5. After the surgery I started having pain in my SI joints. My neurosurgeon had already told me that I had several things wrong with my back. The surgery was because of nerve damage and I was in danger of having drop foot. The pain from the SI joints is horrible, some days I can barely get through the day. I have had one injection in each joint and it helped a little. In a week I'm going to have second injections. I am also going for physiotherapy starting next week. I have been told that more than likely I will need surgery.

Was this comment helpful?Yes
Comment from: jeannev, 45-54 Female (Patient) Published: November 06

I have been miserable with this SI (sacroiliac) pain for a month. I have had three scopes on my right knee, four on my left, bilateral knee replacements and a right knee redo in May, 2013. I am not a wimp, but this pain is nothing short of agonizing. NSAIDS and steroids don't help. I have no more sick time and I am a nurse, so I have to walk. I am running out of options. So far physiotherapy and chiropractic therapy have not helped either.

Was this comment helpful?Yes
Comment from: middleages, 45-54 Female (Patient) Published: October 18

I have had severe low back pain since March 2009. I had been moving and had some low back pain and hip pain. I went to an urgent care and was given muscle relaxers and tramadol. No better. My husband took me to the emergency room and the doctor the diagnosed a herniated disc. I was given painkillers and steroids. Saw my primary doctor and she ordered MRI. Herniated disc at L5-S1. More painkillers and referral to orthopedic group. Great physiatrist did an epidural and then pool therapy. Good results but still lingering pain. That doctor kept me going for 2 years with epidurals and trigger point injections. I moved and have had constant pain in my low back and hip, radiating to mid thigh. This spring the pain started going to my foot so the pain management doctor did two epidurals 6 weeks apart. No more pain to my foot but still had low back pain. He thought it might be sacroiliac joint (SI) pain. Another doctor had suggested this but my insurance would not approve SI injections because my hip X-ray and MRI were "negative." This new pain management doctor got in my insurance's face and told them I had been in pain for over 4 years and taking opioids and the only true test for SI is injections. They approved injections right then and there. I had my first SI joint injections today, 12 hours ago. It was instant relief when the lidocaine hit the joint. The numbness has worn off. I'm sitting for over 2 hours now with pain level maybe at a one! I have not been even able to sit through a two hour movie for over 4 years! Don't give up, keep pushing until you find that right doctor! I am weeping with joy. Finally, the correct diagnosis and the usual pain level of 4 to 6 is gone!

Was this comment helpful?Yes
Comment from: Jaime, 55-64 Male (Caregiver) Published: August 07

My first experience with SI joint was in 1991 in Peru while bending over to get something from the futon I was sleeping on and my entire lower back ceased up and I felt the muscle tighten up so fast and strong it made me nauseated and dizzy. I had to force myself to fall on the floor and the pain was excruciating. Had it not been for a friend looking for me I would have been paralyzed there on the floor for hours. I have since experienced this through the years and doing as little as putting on a pair of shorts after showering which happened two days ago. It takes up to 10 days to fully heal and what I dislike about this condition is that it hits without warning. I have been very active my entire life playing sports and traveling. It's sad when this happens but it won't stop me from doing what I love doing, it just takes a little longer to do what I enjoy doing, but I do it! Life's too short!

Was this comment helpful?Yes
Comment from: Flareup52, 45-54 Female (Patient) Published: August 20

I have been having back pain for more than 20 years. The first time I noticed was after the birth of my 20 year old. I thought I had injured my back by doing the stepper exercises. So I stopped. Over the years the pain became more aggravated and after I had my youngest child ten years ago the condition really worsened. Long story shorter I have tried Meloxicam, Aleve, Ibuprofen and even lost 25 pounds recently. After increasing my exercise (treadmill/slight incline level and elliptical) I have the worst flare-up ever. I was told I have lordosis, degenerative joint disease (DJD), and a slight leg discrepancy. My inflammation levels are off the chart and have been for more than a year. I have decided to try acupuncture and acupressure after hearing many people's testimonies of great results. My first appointment is tomorrow morning.

Was this comment helpful?Yes
Comment from: Blnd02, 45-54 Female (Patient) Published: August 19

I have severe pain which it's making me nauseated and lightheaded, I have scoliosis and I have a twisted pelvis, guess I'm having a flare up. If so I wonder how long they last, my sacroiliac (SI) joint is so painful!

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Sacroiliac Joint Dysfunction - Treatments Question: What treatment has been effective for your SI joint pain?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.