Patient Comments: Sacroiliac Joint Dysfunction - Experience

Please describe your experience with sacroiliac joint dysfunction (si joint pain).

Comment from: Chelsee, 45-54 Female (Patient) Published: January 14

To those who have had the SI (sacroiliac) joint problem for years and are getting no relief, you need to see an orthopedic surgeon who specializes in this. I am a nurse, so caregiver but also an SI patient. Most patients, as I have read, have gotten between 95-100% relief from SI joint fusion. I had my right fused and got 85-90% relief, and am a lot better than I was. Although, I had started smoking again, I will not start when I have the left side fused. I'm hoping quitting will reverse my pain on the fused side. When all else failed, this surgery was life changing for me. MRIs and such can and usually do appear normal with this condition.

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Comment from: Moushiel, 55-64 Female (Patient) Published: November 21

After three weeks of pain in my buttocks, pelvis and hip traveling down to my knees, I finally went to my specialist who is an anesthetist and certified in pain management. He did a quick examination while I stood and he said he believed it was the sacroiliac joint. We then went in the surgical room I was prepped and sure enough on the images was a very inflamed joint. He injected lidocaine and cortisone directly into joint. One day later I am sitting without pain.

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Comment from: Dearrosie, 65-74 Female (Patient) Published: November 08

I was recently diagnosed with Spondylitis (Arthritis) and had minimally invasive procedure laminectomy at L4 & L5. After the surgery I started having pain in my SI joints. My neurosurgeon had already told me that I had several things wrong with my back. The surgery was because of nerve damage and I was in danger of having drop foot. The pain from the SI joints is horrible, some days I can barely get through the day. I have had one injection in each joint and it helped a little. In a week I'm going to have second injections. I am also going for physiotherapy starting next week. I have been told that more than likely I will need surgery.

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Comment from: jeannev, 45-54 Female (Patient) Published: November 06

I have been miserable with this SI (sacroiliac) pain for a month. I have had three scopes on my right knee, four on my left, bilateral knee replacements and a right knee redo in May, 2013. I am not a wimp, but this pain is nothing short of agonizing. NSAIDS and steroids don't help. I have no more sick time and I am a nurse, so I have to walk. I am running out of options. So far physiotherapy and chiropractic therapy have not helped either.

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Comment from: middleages, 45-54 Female (Patient) Published: October 18

I have had severe low back pain since March 2009. I had been moving and had some low back pain and hip pain. I went to an urgent care and was given muscle relaxers and tramadol. No better. My husband took me to the emergency room and the doctor the diagnosed a herniated disc. I was given painkillers and steroids. Saw my primary doctor and she ordered MRI. Herniated disc at L5-S1. More painkillers and referral to orthopedic group. Great physiatrist did an epidural and then pool therapy. Good results but still lingering pain. That doctor kept me going for 2 years with epidurals and trigger point injections. I moved and have had constant pain in my low back and hip, radiating to mid thigh. This spring the pain started going to my foot so the pain management doctor did two epidurals 6 weeks apart. No more pain to my foot but still had low back pain. He thought it might be sacroiliac joint (SI) pain. Another doctor had suggested this but my insurance would not approve SI injections because my hip X-ray and MRI were "negative." This new pain management doctor got in my insurance's face and told them I had been in pain for over 4 years and taking opioids and the only true test for SI is injections. They approved injections right then and there. I had my first SI joint injections today, 12 hours ago. It was instant relief when the lidocaine hit the joint. The numbness has worn off. I'm sitting for over 2 hours now with pain level maybe at a one! I have not been even able to sit through a two hour movie for over 4 years! Don't give up, keep pushing until you find that right doctor! I am weeping with joy. Finally, the correct diagnosis and the usual pain level of 4 to 6 is gone!

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Comment from: Jaime, 55-64 Male (Caregiver) Published: August 07

My first experience with SI joint was in 1991 in Peru while bending over to get something from the futon I was sleeping on and my entire lower back ceased up and I felt the muscle tighten up so fast and strong it made me nauseated and dizzy. I had to force myself to fall on the floor and the pain was excruciating. Had it not been for a friend looking for me I would have been paralyzed there on the floor for hours. I have since experienced this through the years and doing as little as putting on a pair of shorts after showering which happened two days ago. It takes up to 10 days to fully heal and what I dislike about this condition is that it hits without warning. I have been very active my entire life playing sports and traveling. It's sad when this happens but it won't stop me from doing what I love doing, it just takes a little longer to do what I enjoy doing, but I do it! Life's too short!

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Sacroiliac Joint Dysfunction - Treatments Question: What treatment has been effective for your SI joint pain?

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