Patient Comments: Rheumatoid Arthritis - Experience

Please describe your experience with rheumatoid arthritis.

Comment from: Judie, 65-74 Female (Patient) Published: February 18

The pain started in both arms about a month ago and now everything hurts. I am an active person who tends horses and feeds a lot of animals. I ride a lot, and work around on the farm. This rheumatoid arthritis came out of nowhere and I feel like I have the flu or something because I ache all over.

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Comment from: Lochner, 45-54 Male (Patient) Published: February 07

I have been diagnosed with RA (rheumatoid arthritis) a year ago. I started with frontline medicines methotrexate and Celebrex. RA factor is 1030 where 5 is normal. I will be seeing a specialist to be prescribed different medications. Most joints are ok, ankles and feet hurt most.

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Comment from: Maura, 65-74 Female (Patient) Published: December 13

I have arachnoiditis, osteoarthritis and rheumatoid arthritis. I have had these for over 40 years and the pain and inflammation is continuing to be more debilitating. I am unable to take NSAIDS, so must control with a narcotic. I go to the gym every day with the exception of Sundays. My only true exercise is at the gym because I am unable to walk on any type of uneven pavement or ground. The only thing that has kept me out of a wheelchair, at this time, is the gym and also the fact that I have a pug. The worry about what would happen to her really keeps me focused on trying and not giving up. I am also a stage IV breast cancer with metastases to the bone survivor for 5 years. Although I am in incredible pain, life is to be enjoyed and I try!

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Comment from: Godsway, 65-74 Female (Patient) Published: October 08

I went to a arthritis specialist 25 years ago she said your rheumatoid arthritis is so advanced we can only do pain control. I had back surgeries and neck surgery too. In 2007 I felt better and I canceled surgery for rods in my toes and a plate in my foot and a morphine pump. My neck can turn now it had not since 1969. I do have pain at times. My fingers double up and freeze mostly when I'm sewing or crocheting. I recently had a cortisone injection in my elbow. Something is going on in my groin that caused severe pain. A cat scan showed a hematoma, cyst, or aneurism. They are not sure. But the pain is better for now. All is not bad, considering. I am on blood pressure medicine, blood thinner, baby aspirin, Tylenol/codeine, and/or Motrin only as needed.

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Comment from: Lisanexeter, 45-54 Female (Patient) Published: March 22

One morning I woke up with rheumatoid arthritis. The onset seemed overnight. Weeks passed until I was diagnosed. I had a severe case. The depression was overwhelming at first. Everything changed. My life does not allow immobility. I had months of pain with little progress. My only hope was starting new medications. The methotrexate started to work. Finally, I received Enbrel injections. It took months before I improved. I experienced two flare-ups, but they quickly passed. I still have fears about the future, but things do get better with time.

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Comment from: lauren, 25-34 Female (Patient) Published: June 04

After 10 years of tests and surgery to both my ankles. I have finally been diagnosed with rheumatoid arthritis at the age of 27. No one would diagnose me with arthritis at such young age. I am on methotrexate, folic acid, Celebrex, sulfasalizine and tramadol to control my symptoms. I have to go for 6 weekly blood tests for liver function/ I can't even walk for ten continuous minutes with crying from the pain in both my ankles. I can't even go shopping with my friends because I can't walk around for long. I work in aged care i have more pain then most of the 80 year old residents I ooh after.

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Comment from: melrosebelleacre, 45-54 Female (Patient) Published: March 08

I've had rheumatoid arthritis for 7 years. I work as an RN and have pushed myself beyond what I should have because of public opinion related to disability and the way that physicians view patients with chronic medical problems. I've not been offered OT or PT for splints. I wear generic splints from the store and I am certain although I am very clean, I am an infection control nightmare. I must protect my joints. I've had one tendon repair surgery and it took months of recovery and my finger will never be straight again. I think doctors have no interest if you already have a chronic illness. I feel bullied to report that I am doing fine, but honestly, I am not doing fine at all. Outstanding evals at work, though they tell me I am not physically capable of doing my job and that I should look for something else. 20 years of being a caregiver to all, for this.

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Patient Comments

Viewers share their comments

Rheumatoid Arthritis - Early Symptoms Question: What were your symptoms at the onset of your rheumatoid arthritis?
Rheumatoid Arthritis - Treatments Question: What treatments have been effective for your rheumatoid arthritis?
Rheumatoid Arthritis - Prognosis Question: What's the prognosis for your rheumatoid arthritis?
Rheumatoid Arthritis - Diet Question: Discuss the diet or other lifestyle changes you've made to relieve symptoms of RA.
Rheumatoid Arthritis - Diagnosis Question: What led to your rheumatoid arthritis diagnosis?

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