Patient Comments: Rhabdomyolysis - Symptoms

What were the symptoms of your rhabdomyolysis?

Comment from: fluffy1, 55-64 Female (Patient) Published: April 10

I am wondering if I could possibly have rhabdomyolysis. I started taking Lyrica for fibromyalgia two weeks ago. I started at 150 mg a day and now am taking 300 mg a day. Two days ago, I woke up with very stiff legs. This has not gone away. I did not have this pain before taking Lyrica.

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Comment from: stilldontknow, 45-54 Female (Patient) Published: February 15

I am a 49 year old female. I had Rhabdomlyosis back in November 2011. They said I had Rhabdomlyosis with CPK levels at 58000. I am healthy female, don't smoke and have never taken drugs. I am not on any meds. They tested me for everything, I was in the hospital for a week. The CPK went down to 1000 when they let me go. To this day we still don't know how or why I got it.

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Comment from: Juggernaut Johnson, 19-24 Male (Patient) Published: December 06

I had always been a very active person. In high school I boxed and played rugby. I joined the Army right out of high school and on my very first day, while doing push ups, my left arm just clasped and gave out on me. Fearing that I was going to get sent home early I didnt tell anyone until a few days later when I couldnt hide my pain and the fact that I couldnt move my arm. I got ammited to a hospital and the doctor told me my cK level was over 150,000. Told me what rhabdo was and put me on bed rest and IV for a week and a day. It sucks now that I'm out I'm afraid to work out because of fear of the pain.

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Comment from: MsGirl, 25-34 Female (Patient) Published: August 15

I experienced a bout of rhabdomyolysis after an extremely tough workout with a trainer. Both of my upper arms became extremely swollen and my CPK levels measured 44,000. I was hospitalized for 2 days and given IV fluids which reduced my numbers back to normal. My doctor and I agreed to move very slowly back into the gym after a 4 week waiting period Unfortunately, the first time I put any stress on my arms my CPK level spiked to 1000. Right now it looks like I won't be hitting the gym for a while until we figure out what's going on. I am not on any of the medicines others have mentioned, but I do suffer from rhumatoid arthritis, so we are investigating whether this could be related.

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Comment from: Bill W, 55-64 Male (Patient) Published: March 28

I am sitting here in the hospital for the fifth day with rhabdomyolysis which was brought on by starting weight training and being Simvastatin. I've been tethered continually to an IV to rehydrate myself and to flush all the bad stuff out of my blood stream. When I was admitted my CK was over 15,000. Today I am at 1,500. My symptoms included swollen arms (twice their size), lack of range of motion in the arms, and achiness. I was lucky that my kidneys are not damaged and that all other blood markers are normal -- some elevated liver counts -- but within acceptable levels.

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Comment from: anonymous a, 55-64 Female (Patient) Published: February 22

With rhabdomyolis I experienced severe muscles spasms beginning on the left side of my body - a severe pain shot down my left arm and I felt like I was having a heart attack. My husband took me to the emergency room...I was told there was nothing wrong with me -- they did not check my cpk levels or urine. About 5 days later, it happened on the other side of my body. This time it shot down both the front and back of the right half of my body. My husband took me back to the emergency room. Thank God! I had a different doctor this time. She had the sense to check my cpk level and other levels. My cpk had shot to over 900 and my potassium levels were also high. I have stopped taking simvastatin. I was only taking 10 mg. I have undergone weight gain. I have not changed my diet. I have put on about 20 lbs in 11 months. I also take synthroid. This was also checked and monitored. My tsh levels are still in the normal range. The only thing that I can account the weight gain to is the statin rhabdomyolisis. At the time of the onset, I also had dark urine. I still do not have the endurance physically that I used to have before this happened. I am also suffering from tremendous lower back pain. This has been checked recently. I was told that I have arthritis in my back. I make sure I stay hydrated. I'm hopeful that I will fully recover.

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Rhabdomyolysis - Describe Your Experience Question: Please describe your experience with Rhabdomyolysis.
Rhabdomyolysis - Diagnosis Question: What tests and exams did you have that led to a diagnosis of rhabdomyolysis?
Rhabdomyolysis - Treatment Question: What kinds of treatment did you receive for rhabdomyolysis?

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