Patient Comments: Restless Leg Syndrome - Treatments

What method did you find most effective in treating your restless leg syndrome?

Comment from: MartyC, 65-74 Female (Patient) Published: April 26

The lady who described restless leg syndrome as feeling like worms crawling inside your legs most described what I have felt for years. My legs don't jerk as so person's legs do. I have been on several medicines over the years and am now on Requip 1mg (5Xdaily)(1AM,NOON,Dinner and 2 at bedtime). This usually works as long as I remember to take it.

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Comment from: Sherwood315, 45-54 Male (Patient) Published: April 25

I am 49 yo male 6'2" 235lbs and have had restless leg syndrome since childhood with the last 10 years increasing to nightly episodes. I have had very positive results with Ultram(tramadol) 50mg 3 times during the day, 10am, 4pm, and one right before laying down at 9-10pm. I have found no relief for RLS triggered by diphenhydramine.

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Comment from: Tam, 45-54 Female (Patient) Published: April 20

I feel as though my legs could run a marathon at night with frequent bouts of jerking. I didn't realize I had RLS until I read up on it. I'll be speaking to my doctor about treatment. I've been taking over the counter sleep aids to help, but find myself groggy and still not sleeping. I didn't realize this was a real syndrome. I also think standing or working on your feet all day has something to do with it.

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Comment from: CTYankeelady, 65-74 Female (Patient) Published: April 19

I was having a terrible time with restless legs and losing sleep night after night after night. I read somewhere that Vitamin B12 helps and so I tried it. Two weeks ago, I started taking 2000 mg of slow release B12 tablets and from the first night of taking them I have not had a single episode of restless legs. It's wonderful!

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Comment from: Male Published: April 19

I started to get Restless leg syndrome in my mid twenties and still have it as a 55 year old male. I'm very athletic, eat well and have not been able to find any cure for it. I have tried deep knee bends, when it starts but it only relieves it when I'm actually doing them. I usually get it when trying to sleep, and have been awake all night often. I had an operation about 20 years ago, and they gave me codeine for the pain. I also noticed that codeine stopped the restless leg syndrome, and have been taking it most nights. It's the only thing that I have found to relieve the symptoms. Not a good thing to use every night, but it's better than not sleeping.

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Comment from: ExNYer, 65-74 Female (Patient) Published: April 19

About 15 years ago, I started having an aching feeling in my legs and had trouble sleeping because it was so bad. I told my Dr. about it and he just said that his legs ached too. Needless to say, I got another doctor, but he didn't know what it was either. Finally, I read an article on Restless Leg Syndrome and realized that is what I had. The article said a way to stop the ache was to lay on your stomach for about 10 or 15 minutes and the pain would go away. Believe me, IT WORKED!! I know it sounds really strange, but it works for me.

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Comment from: TAofSBK, 55-64 Female (Patient) Published: April 14

I recently lost my job in Aug. and my health is not good. I have not been able to seek a doctor and about 3 months ago began to experience symptoms not described by RLS. I don't have the urge to move my legs at night but when I'm sitting or lying down I feel my legs move and you can see my muscles or nerves or whatever move. It looks like a facial tic all over my thighs and calves. At times I can feel the tics in my arms and sides of my body. I know the answer will be...go to a doctor. I can't afford the office visits or the lab tests. There is no help out there for the newly poor without work. I am diabetic but my diabetes is very controlled. My nerves however are out of control. Living under lots of stress. I'm 62.

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Comment from: Ann, Female (Patient) Published: April 12

I'm 70 years old and have had restless leg syndrome for several years. The doctor prescribed Mirapex. Sometimes it works, sometimes it doesn't. Sometimes it makes me jittery. Right now it is 3:30 am and I'm still awake because my legs still jerk.

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Patient Comments

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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