Patient Comments: Restless Leg Syndrome - Treatments

What method did you find most effective in treating your restless leg syndrome?

Comment from: Irishlady, Female (Patient) Published: February 14

I am a retired 65 y/o female who has had RLS since my teens. I never realized it was a neurological disorder that could be treated. I have had problems sitting for any length of time and lying in bed when it gets especially bad. Sitting while teaching was so difficult. About 2 years ago, I saw a doctor who prescribed Mirapex. I also take iron and vitamin C, as my Ferretin level was low. I take the Mirapex routinely at bedtime, and intermittently during the day if I have symptoms or know I will be sitting a long time. I have had tremendous relief, although I still have occasional humdingers about once a month. On those nights, I feel especially grateful for the relief I get most of the time!

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Comment from: obscura, 65-74 Female (Patient) Published: January 31

I have found that capsules of l-tyrosene, an amino acid and calcium and magnesium tablets (+ boron), help considerably. When at its worst, I take one of each and also take both each night at bedtime to try and stop it happening. It does not seem possible to prevent it entirely but the frequency of the RLS sensations is much less on this regime for me. Hope this helps. I first realized that calcium could help with this problem when I was pregnant, if I took a calcium tablet (crushed - it was many years ago) this would stop it.

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Comment from: koradoras, 65-74 Female (Patient) Published: January 18

I have RLS since the age of 22. I am now 67. Having a job and raising my two children is unbelievable without sleep every night. I had about 2.5 hours sleep a night. My feet get hot, veins swell, a snake like feeling up and down my top half of my legs, legs jerking, sometimes it's the right leg, sometimes the left sometimes both. I couldn't even control going to a movie. Life was a hell during those years. Years later at the age of 40's I read in woman's magazine about mirapex, so I asked my doctor if I could try, long before this he prescribed many meds and to my disappointment it did not work. The first night I took the mirapex I fell asleep peacefully for the first time in 26 years. Now I can't live without them. I slept in and was late for work first time ever.

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Comment from: Tim, 65-74 Male (Patient) Published: July 28

I take 3 mg of ropinirole for restless leg syndrome, which helps a little. Don't laugh but I am putting a bar of soap in my bed at night and it seems to be working.

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Comment from: RLSgetsWorse, 55-64 Female (Patient) Published: December 04

This sounds crazy and it is so simple. Just put a bar or chunk of soap under your sheets by your feet when you go to bed. You can even leave it in the wrapper. I don't know how it works but it does! Doesn't cure restless leg syndrome but does cut down the symptoms drastically. And no need for drugs.

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Comment from: Living with it, 45-54 Female (Patient) Published: October 15

I have had this horrible problem for most of my life. I remember being a small child kicking the seats and walking my feet and legs up the windows to get the coolness to settle my legs. I am now 50 years old and currently taking ropinorole. This works but it takes about 45 minutes of suffering for it to finally kick in then I get tired.

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Comment from: AKA, 65-74 Male (Patient) Published: June 28

What a journey... I went through a lot already. What helps me is: - no starches (tomatoes, potatoes etc) - no cafeine (although sometimes a short black does help!) - less dairy product - tens machine if symptoms not too bad. - magnesium (liquid spray on skin is best absorbed) - no MSG - deep thumb massage in calves muscles - feet straight up the wall for 20 min. - melatonin 3mg for sleeping - aspirin sometimes - medical marijuana in any form - accupuncture - meditation Good luck to you with these :-)

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Comment from: brenda, 45-54 Female (Patient) Published: March 29

I am 50 years old. I have suffered with restless leg syndrome for as long as I remember. I think I had some of the symptoms when I was a child. My grandmother called it "growing pains." Recently I saw my doctor for this condition. I'm now on the generic for Mirapex (pramipexole). I feel like it is working, as I haven't even been awakened as usual, shortly after falling asleep. I was getting symptoms more days in a week than not. The other medications I've tried to treat restless leg syndrome haven't helped. I was on these medications for other purposes. I really am starting to have faith that this medication will help me, so I may have more restful sleep during the night.

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Patient Comments

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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