Patient Comments: Restless Leg Syndrome - Treatments

What method did you find most effective in treating your restless leg syndrome?

Comment from: Flora, 35-44 Female (Patient) Published: November 21

I am a RLS (restless leg syndrome) sufferer for many years now. I was so frustrated and tired all the time. I often felt like my general physician won't really believe me when I spoke to him about my condition. About 2 years ago i got injured in my right shoulder, my specialists prescribed me some oxycodone for the pain. Yes, I know that it is a narcotic but it has been the only medicine that has helped me. I only take one pill of 10mg before bedtime and I sleep like a baby with no morning drowsiness. I had previously tried taking magnesium and B12 and more iron supplements but to no relief. I also tried Mirapex and baclofen but it did nothing. I also don't drink coffee nor smoke. Needless to say that I also have RLS during the day but tolerate it with constant movement as I work. When I go to bed it is at its worse. I know that taking narcotics is not the right route but it is the only thing that has worked for me.

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Comment from: Lyndyloo, 55-64 Female (Patient) Published: November 20

I started with restless legs in my early 40s and at first it only occurred about the time of my periods but with menopause it became worse. I used to sleep eventually with ice blocks under my calves. I was given ropinirole by a locum doctor at our practice and I haven't looked back since. It was a lifesaver!

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Comment from: Vonnierae, 65-74 Female (Patient) Published: October 31

I have had RLS (restless leg syndrome) since I was a child and the older I get, the more intense it is. Finally, when in my 40s, I was diagnosed with RLS. Mirapex lessened my symptoms but I was continually increasing the dosage to decrease the symptoms. Then I went to a sleep specialist and he prescribed ropinirole plus Tylenol #3 at bedtime and it works most of the time. I finally get consistent good sleep. I use a weighted blanket, lap size, when I need to sit for any length of time and travel with it. The only thing that stops an episode is an extremely hot bath immersing all but my head. Within 2 minutes the symptoms are gone. The water needs to be as hot as you can endure. I soak for 10 to 15 minutes and dry off with a towel that I warm up in the dryer while the tub is filling. I roll the towel and it stays toasty until I need it.

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Comment from: Tilton92, 45-54 Female (Patient) Published: January 14

I have had restless leg syndrome (RLS) for about 14 years. I have been on several medicines for it but they just make me feel really sick so I stopped taking them. My legs get so bad at night that the only way I can describe it is, it feels like I could twist my legs and ankles off my body. The only thing that helps me is for my husband to rub my legs like a deep massage, five minutes of that and I am asleep in no time. This is a horrible condition that I wish there was a cure for.

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Comment from: Cat, 45-54 Female (Patient) Published: January 09

When I was in my twenties, I would occasionally get what I called 'rubbery legs', in the evenings. When I was in my thirties my restless leg syndrome was almost unbearable during the third trimester of both of my pregnancies. As I have gotten older, it has gotten worse. Tramadol helps but I don't like the way it affects my mood. My doctor just prescribed Mirapex ER. I hope it helps!

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Comment from: Weeroo, 55-64 Female (Patient) Published: November 19

For restless leg syndrome, massage with a rolling pin, always rolling up from ankle toward the heart. Do not do this if you have bad varicose veins. Very effective and easy to do yourself.

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Comment from: 55-64 Female (Patient) Published: March 03

I have had RLS (restless leg syndrome) for several years, not knowing what it was for the most. It started out with my right leg feeling like it had no blood, just a weird feeling but recently it feels like hot liquid running up and down my leg along with spiders crawling, the whole gambit. Now it has gone to the other leg as well as my right arm. I am on Requip along with Tegretol. I take the Requip about an hour before bed or it won't work. I was just recently diagnosed with sleep apnea as well, I think they run hand in hand, get tested, you don"t want to die in your sleep.

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Patient Comments

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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