Patient Comments: Restless Leg Syndrome - Treatments

What method did you find most effective in treating your restless leg syndrome?

Comment from: Metoo, 55-64 Female (Patient) Published: November 04

I have suffered with restless leg syndrome (RLS) most of my life. I have taken many different drugs, some have done nothing. Some have helped for a while. I now take sleep medicines. I am asleep within 10 minutes. I sleep all night. I wonder why the doctors did not think of this sooner.

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Comment from: Suzanne, 75 or over Female (Caregiver) Published: October 16

My mother, who has terrible restless legs syndrome, is 97 years old. She was in withdrawal from Percocet. I have tried remedy after remedy and nothing worked. Then I read that someone had had success with tonic water with quinine. I gave my mother about 8 oz. of Schweppes tonic water and about half an hour later her restless legs had stopped and she was able to sleep for the first time in about a week! Hope this helps others.

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Comment from: Mila74, 35-44 Female (Patient) Published: September 04

I have been suffering from restless leg syndrome (RLS) for the past 13 years or so. At first I didn't take much notice but as I slowly moved to my 30s it worsened. So I started taking tramadol which works like magic. And I can't take Maxolon, it worsens my RLS. I don't think a lot of people understand my condition. I have been told ointments will help but they don't. To avoid any addiction to tramadol, they have added gabapentin with it. Not much difference. So back to tramadol.

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Comment from: Flora, 35-44 Female (Patient) Published: November 21

I am a RLS (restless leg syndrome) sufferer for many years now. I was so frustrated and tired all the time. I often felt like my general physician won't really believe me when I spoke to him about my condition. About 2 years ago i got injured in my right shoulder, my specialists prescribed me some oxycodone for the pain. Yes, I know that it is a narcotic but it has been the only medicine that has helped me. I only take one pill of 10mg before bedtime and I sleep like a baby with no morning drowsiness. I had previously tried taking magnesium and B12 and more iron supplements but to no relief. I also tried Mirapex and baclofen but it did nothing. I also don't drink coffee nor smoke. Needless to say that I also have RLS during the day but tolerate it with constant movement as I work. When I go to bed it is at its worse. I know that taking narcotics is not the right route but it is the only thing that has worked for me.

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Comment from: Lyndyloo, 55-64 Female (Patient) Published: November 20

I started with restless legs in my early 40s and at first it only occurred about the time of my periods but with menopause it became worse. I used to sleep eventually with ice blocks under my calves. I was given ropinirole by a locum doctor at our practice and I haven't looked back since. It was a lifesaver!

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Comment from: Vonnierae, 65-74 Female (Patient) Published: October 31

I have had RLS (restless leg syndrome) since I was a child and the older I get, the more intense it is. Finally, when in my 40s, I was diagnosed with RLS. Mirapex lessened my symptoms but I was continually increasing the dosage to decrease the symptoms. Then I went to a sleep specialist and he prescribed ropinirole plus Tylenol #3 at bedtime and it works most of the time. I finally get consistent good sleep. I use a weighted blanket, lap size, when I need to sit for any length of time and travel with it. The only thing that stops an episode is an extremely hot bath immersing all but my head. Within 2 minutes the symptoms are gone. The water needs to be as hot as you can endure. I soak for 10 to 15 minutes and dry off with a towel that I warm up in the dryer while the tub is filling. I roll the towel and it stays toasty until I need it.

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Comment from: Tilton92, 45-54 Female (Patient) Published: January 14

I have had restless leg syndrome (RLS) for about 14 years. I have been on several medicines for it but they just make me feel really sick so I stopped taking them. My legs get so bad at night that the only way I can describe it is, it feels like I could twist my legs and ankles off my body. The only thing that helps me is for my husband to rub my legs like a deep massage, five minutes of that and I am asleep in no time. This is a horrible condition that I wish there was a cure for.

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Comment from: Cat, 45-54 Female (Patient) Published: January 09

When I was in my twenties, I would occasionally get what I called 'rubbery legs', in the evenings. When I was in my thirties my restless leg syndrome was almost unbearable during the third trimester of both of my pregnancies. As I have gotten older, it has gotten worse. Tramadol helps but I don't like the way it affects my mood. My doctor just prescribed Mirapex ER. I hope it helps!

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Patient Comments

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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