Patient Comments: Restless Leg Syndrome - Experience

Please describe your experience with restless leg syndrome.

Comment from: raj, 35-44 Male (Patient) Published: June 04

I am 44 years old and fighting with this restless leg syndrome for last four years. It starts at night in my feet as soon as I go to bed and gradually increases. Even though I feel sleepy I cannot sleep after lying on bed and closing the eyes. I do not take any medicines. If I cannot sleep I get up and do stretching, massaging, walking for some time and sleep again. When I do regular exercise it helps me to sleep immediately on bed before it gets aggravated.

Was this comment helpful?Yes
Comment from: marbles, 55-64 Male (Patient) Published: March 18

Up until age 60 I had very good health, or so I thought. Then heart failure, COPD, restless leg syndrome (RLS), sleep apnea... beginning to sound like a Studebaker way past its prime. Never noticed the RLS until after my open-heart surgery to replace aortic valve and my convalescing. With a new awareness of my body's failings, I realized I had been having minor RLS symptoms for years (constant low-grade tingling), passing it off as fatigue. Now, seemingly, a switch had been levered which brought this affliction to my daily life. Still working on a fix that works for me.

Was this comment helpful?Yes
Comment from: Restless in CA, 55-64 (Patient) Published: March 07

I have had RLS (restless leg syndrome) for about 20 years and it does seem to be getting worse. I am up to 2 pills a night. During the last decade I have notice that uric acid might have something to do with it. After about 2 hours of my legs spasming out, I go and void all the urine out of my system. I have not read any correlation about RLS and uric acid but I believe there is something to it. So, the next time (which will be tonight for many of you), sit on the throne, relax, read and void every drop. I hope this helps!

Was this comment helpful?Yes
Comment from: Recycledritz, 65-74 Female (Patient) Published: February 10

I have fibromyalgia, chronic fatigue, reflex sympathetic dystrophy, migraines, restless leg syndrome and a very significant back pain problem. Of all these, RLS is by far the worst thing I deal with at night; it is pure torture. I was on Mirapex for 6 to 7 years and it worked great, then suddenly just quit working. I was prescribed Requip that worked for a few weeks then stopped working. I was then prescribed Neupro patches and I would have just as much results with a Band-Aid. I started taking supplements of magnesium, potassium, vitamin D and a very low dose of iron (on my own after research) and saw some relief for a short while. I continue with them even though I get no RLS benefit anymore. I really wish science would put more effort into finding cause and cure for this. One might say "but it's not life threatening"; unfortunately, that's true.

Was this comment helpful?Yes
Comment from: JJG, 65-74 Female (Patient) Published: February 07

I have had RLS (restless leg syndrome) for as far back as I can remember. All four of my children have it too. When they were small we referred to it as "crawly legs". It wasn't until about ten years ago that I discovered there was treatment available. I take pramipexole and it has made a huge difference. Prior to treatment I had trouble sitting still long enough to watch a movie. Road trips were miserable, I would literally put my feet on the dashboard to try and get relief (fortunately I'm very limber!) I constantly had to keep my legs moving! I truly empathize with others dealing with this problem and encourage you to seek treatment. Also, exercise, especially walking, helps a lot.

Was this comment helpful?Yes
Comment from: Julieg48, 45-54 Female (Patient) Published: May 02

I have suffered with restless leg syndrome (RLS) for many years. I was told it was stress and lack of sleep. People thought it funny to see my legs always "jumpy ". I was given a prescription which barely touched it. Finally someone took it seriously and I am now on road to a better way of living. It got so bad I couldn't sit at work or even drive my car. I so appreciate all the related articles... good to know I am not alone.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.