Patient Comments: Restless Leg Syndrome - Experience

Please describe your experience with restless leg syndrome.

Published: June 11

Excessive sleepiness to extreme sleepiness has infected me for four or so years. I have had several sleep studies diagnose apnea, narcolepsy, and finally RLS. I have started out with Requip and tried higher doses but have remained on IMG. At first I thought it was a miracle drug. I slept and felt alert and awake. Now it is, I think, making me groggy or sleepy the next day, defeating its purpose. If someone doesn't wake me and cause me to get out of bed, I will remain in bed all day. What to do, I don't know. I surely do not want to return to the state I was in before I started Requip. Also, I knew that I was jumpy at rest, jumping as if someone had stuck me with a cattle prod but otherwise I had no idea that I had some restless leg problem until a sleep study showed it. I have had my share of medical problems but this sleep disorder is the worst problem I have ever had. I'm talking about cervical osteotomies, halos and body braces, nerve damage and staff infections.

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Published: June 11

It feels like someone is running their finger up the sole of my foot (I'm quite ticklish) and it makes my legs jump. Generally one side is stronger than the other, though both seem to be active at the same time. I can never tell when it's coming, and sometimes it only lasts a few minutes, but other times it can go the whole night. Sometimes a hot bath helps, or doing some exercises or stretches centered on my feel (calf lifts or walking on my toes). It doesn't always work though, and I've found sleep aids most definitely don't help. Just last night it kept me up all night, and I had to call in to work this morning. I was finally able to get some sleep after a cup of coffee with muscle relaxers and Ambien.

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Comment from: yikes, 65-74 Female (Patient) Published: December 01

I wonder if anyone else ever gets painful stretching feeling because of restless leg syndrome, where your toes try to go backwards and up your calf. I always got those spasms when I swam as a child and older.

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Comment from: piria, 45-54 Female (Patient) Published: November 30

With restless leg syndrome my feet are hot and my thighs are burning. I have been walking 6 km at night for 4 to 5 days.

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Comment from: Fritz B., 65-74 Male (Patient) Published: December 24

I have had restless leg syndrome for quite a few years. I am now 72. There are no alternative or home remedies for this condition, none. In almost every case, current thinking is that insufficient quantities of iron in the brain cause this miserable disorder.

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Comment from: les, 19-24 Female (Patient) Published: August 21

I have restless leg syndrome. It's like your legs are so tired and yet you can't sleep! You wish that when you close your eyes your head won't think of it! It is really annoying.

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Comment from: sk, 45-54 Male (Patient) Published: June 24

I am suffering from restless leg syndrome for the last two years. I tried many medications finally ended up with Bilovas tablet. It is an herbal extract from some Chinese plant.

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Comment from: Dede, 55-64 Female (Caregiver) Published: April 11

I am a nurse and I experience restless leg syndrome from time to time. I could swear that the incidence and severity of symptoms was increased by taking glucosamine for my joints.

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Comment from: papajon61, 55-64 Male (Patient) Published: November 06

My problem is I have it day and night. I really don't know what to do.

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Patient Comments

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Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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