Patient Comments: Restless Leg Syndrome - Experience

Please describe your experience with restless leg syndrome.

Comment from: sk, 45-54 Male (Patient) Published: June 24

I am suffering from restless leg syndrome for the last two years. I tried many medications finally ended up with Bilovas tablet. It is an herbal extract from some Chinese plant.

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Comment from: Dede, 55-64 Female (Caregiver) Published: April 11

I am a nurse and I experience restless leg syndrome from time to time. I could swear that the incidence and severity of symptoms was increased by taking glucosamine for my joints.

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Comment from: papajon61, 55-64 Male (Patient) Published: November 06

My problem is I have it day and night. I really don't know what to do.

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Comment from: Patsy, 75 or over Female (Patient) Published: October 18

I have had restless leg syndrome (RLS) for years, my doctor put on a few different medications, I had a sleep study, and I was sent home one morning about 3 a.m., I couldn't get to sleep. I had another study; I am now on gabapentin and take 5 pills day. Some times I still have RLS, I take a shower, walk through the house.

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Comment from: dee, 75 or over Female (Patient) Published: August 20

I take Gabapentin and Requip.

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Comment from: Scott, 55-64 Male (Patient) Published: May 02

Three years after being diagnosed with diabetes, I experienced symptoms of RLS. I thought I was going crazy. It was really bad, day and night. First, I was prescribed Neurontin, which did nothing. I became suicidal. After trying everything prescribed, I started drinking myself to sleep. Finally I read that opiates work for some people. My doctor prescribed Oxycontin and it worked. After four months, he said he could no longer prescribe it. I have been on methadone for seven years and have not lost a night's sleep since. I know it was a drastic measure and decision, but it was that or death. Now I want to try Requip, but am afraid it will not do the job as well.

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Comment from: Helen, 55-64 Female (Patient) Published: April 22

I get restless legs whenever I relax. I have had it while getting my hair cut, getting a pedicure, and a massage. Also, while driving home from the grocery store, while at the movies, and at church. I have worn a hole in my sheets. I had it as a kid too. If I miss my meds, it is an hour and sometimes longer before I can get rid of it. It is a miserable condition.

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Comment from: Subgma, 55-64 Female (Patient) Published: April 05

I am in my early 60s and have severe restless leg syndrome (RLS). I've had fibromyalgia for years and don't really know if this is a symptom of fibromyalgia or actually RLS. I have it mainly during the daytime. I have so much pain in my legs and toes that I don't know what to do with myself. I'm on codeine contin for fibro, but thoroughly dislike the meds – they give me hot sweats so bad. I'm also taking extra-strength muscle relaxants, T3 pills, and have severe depression. I'm on a very high dose of an antidepressant.

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Published: July 08

I have had RLS for many years now and have tried many different drugs to help the symptoms. I now am on 4 mg of Requip and 36 mg of Neurontin a day. I also take 5 mg of Zanax at bedtime. It seems like nothing is really working for any length of time now. I don't know where else to turn as far as what else there is out there that I haven't tried.

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Patient Comments

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Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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