Patient Comments: Restless Leg Syndrome - Experience

Please describe your experience with restless leg syndrome.

Published: June 23

Ever since I was a little girl, I had RLS. When I sleep at night, I would wake up in the middle of the night feeling very uncomfortable around my calf area. I would have to get up and move around, or do some kinds of leg exercise to relief the feeling around my leg area. If I don't move around, the feeling gets worse and extends to my thighs and almost feels like soreness. For some reasons, RLS only occur to me when the weather is hot. It happened more often when I was young and now it occurs around twice a month.

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Published: June 23

RLS is the bane of my life. It starts off with a pricking sensation like pins and needles (but in slow motion) in my lower legs, and from then on, whatever I do, my legs start kicking out and twitching – about once every three seconds or so. This can go on for several hours resulting in continued loss of sleep. When things get bad, I also end up taking some sort of pain relief just to get a few hours respite and fall asleep. It's weird that if I want to 'catch up' with some sleep during the day, my legs stay in one place while I doze yet at night it's completely opposite. I have found that raising the end of the bed substantially seems to help.

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Published: June 23

I have suffered with painful RLS for a few years. My symptoms are present 24 hours a day and are in my legs (upper and lower), hips, arms, neck and chin. I have been on many meds but Tramadol is the only one that if I take it 3 to 4 times a day actually provides any relief. I also get the symptoms so bad at times that I can't walk. This happens at least once a week.

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Published: June 11

Excessive sleepiness to extreme sleepiness has infected me for four or so years. I have had several sleep studies diagnose apnea, narcolepsy, and finally RLS. I have started out with Requip and tried higher doses but have remained on IMG. At first I thought it was a miracle drug. I slept and felt alert and awake. Now it is, I think, making me groggy or sleepy the next day, defeating its purpose. If someone doesn't wake me and cause me to get out of bed, I will remain in bed all day. What to do, I don't know. I surely do not want to return to the state I was in before I started Requip. Also, I knew that I was jumpy at rest, jumping as if someone had stuck me with a cattle prod but otherwise I had no idea that I had some restless leg problem until a sleep study showed it. I have had my share of medical problems but this sleep disorder is the worst problem I have ever had. I'm talking about cervical osteotomies, halos and body braces, nerve damage and staff infections.

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Published: June 11

It feels like someone is running their finger up the sole of my foot (I'm quite ticklish) and it makes my legs jump. Generally one side is stronger than the other, though both seem to be active at the same time. I can never tell when it's coming, and sometimes it only lasts a few minutes, but other times it can go the whole night. Sometimes a hot bath helps, or doing some exercises or stretches centered on my feel (calf lifts or walking on my toes). It doesn't always work though, and I've found sleep aids most definitely don't help. Just last night it kept me up all night, and I had to call in to work this morning. I was finally able to get some sleep after a cup of coffee with muscle relaxers and Ambien.

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Comment from: papajon61, 55-64 Male (Patient) Published: November 06

My problem is I have it day and night. I really don't know what to do.

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Comment from: Patsy, 75 or over Female (Patient) Published: October 18

I have had restless leg syndrome (RLS) for years, my doctor put on a few different medications, I had a sleep study, and I was sent home one morning about 3 a.m., I couldn't get to sleep. I had another study; I am now on gabapentin and take 5 pills day. Some times I still have RLS, I take a shower, walk through the house.

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Comment from: dee, 75 or over Female (Patient) Published: August 20

I take Gabapentin and Requip.

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Patient Comments

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Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Symptoms Question: What symptoms did you experience with your restless leg syndrome (RLS)?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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