Patient Comments: Restless Leg Syndrome - Symptoms

What symptoms did you experience with your restless leg syndrome (RLS)?

Comment from: Selah, 45-54 Female (Patient) Published: March 05

Usually when relaxing in the evening, or just before sleeping, one leg will feel like a surge of electricity (energy) is going to make it explode. Sometimes it jerks by itself, sometimes I jerk it to relieve the explosive feeling. In my case, I have found restless leg syndrome (RLS) to be caused by consumption of caffeine and sugars, or by prolonged stress. A quick, safe remedy I use is to rub the leg down with isopropyl alcohol. Within minutes my RLS subsides.

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Comment from: Andrea Diniz, 55-64 Female (Caregiver) Published: November 01

I need to know if there is relationship between RLS and high levels on ferritin. Thanks Andrea Diniz

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Comment from: Shelly, 55-64 Female (Patient) Published: October 04

I am 57 and have had restless legs syndrome for about 35 years. About 10 years ago, my arms started bothering me. I now have RLS only occasionally, but my arms drive me crazy almost every night. I have pain with my arms as well as the restlessness. I tried Requip, but it made me fall asleep with no warning -- almost like narcolepsy. I wasn't sleepy; I just dropped asleep. One of my daughter's friend's mom had the same thing happen, yet the doctor and pharmacist say they have never heard of that side effect.

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Comment from: akhtrs, 35-44 Female (Patient) Published: October 04

I have been suffering with RLS for years, but the intensity increased when I was diagnosed with MS. I know what lack of sleep can do, so for anyone who wants relief, I strongly suggest Spirulina. Since taking Spirulina, my RLS has disappeared, and it also helps with sleeping issues and increases energy levels.

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Comment from: Mandy123, 45-54 Female (Caregiver) Published: October 04

I have had RLS since my early 20's. I am a 53-year-old female. My feet will get really tingly and itchy. My doctor has put me on gabapentin and Klonopin. They are not helping much anymore. I take Vicodin for my back, and that seems to help some. My legs ache all the time. I cut out caffeine, but it's still bad. I feel as if I am stuck in a loop. I am so tired because my legs bother me, but I can't sleep. My doctor says she can increase the gabapentin, so I will try that. I also saw someone said putting Vicks on your feet will help, so I will try that, too.

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Comment from: Rachel, 65-74 Female Published: September 13

I can some relief with one half pill of my prescription of klonopin. Also a red hot shower sometimes works. I am 72 and have struggled with this for years. Also a hot cup of decaf tea and knitting can work. My dad had it - he soaked in a hot bathtub (this was before showers).

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Comment from: friskiekatz, 55-64 Female (Patient) Published: August 31

I started having RLS in my 50's. I can't stand it. It's three in the morning before I fall asleep. My legs have to move. I have crawling sensations down my legs.

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Comment from: O Lucas, 75 or over Female (Patient) Published: July 29

I am 77 years old, have experienced Restless Legs Syndrome for several years, it hard to explain, cannot sleep legs keep me trashing and cannot sleep, if I stand up and put pressure on my legs I do get some releif. It is probably the most annoying pain anyone can experience. My Dr. put me on Ultram about 15 years ago (not generic) that did not work for me. The ultram taken 4 times a day works great. It is very experience and do not know what i am going to do as I can not afford it anymore.

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Comment from: Iamasinger, 65-74 Female (Patient) Published: July 29

I am a 67 year old female. My RLS symptom is an uncontrollable urge to move my knees. Last night I spent 6 hours in a very busy ER trying to get some relief. The single doctor on duty gave me a antidepressant! Needless to say, I didn't take it, because I am a very positive person--a Pollyanna, whose glass is always half full. I was on Mirapex, but can't afford it anymore, being on Social Security and a small pension. I will call my doctor about Tramadol, which I read about on this site.

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Patient Comments

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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