Patient Comments: Restless Leg Syndrome - Symptoms

What symptoms did you experience with your restless leg syndrome (RLS)?

Comment from: akhtrs, 35-44 Female (Patient) Published: October 04

I have been suffering with RLS for years, but the intensity increased when I was diagnosed with MS. I know what lack of sleep can do, so for anyone who wants relief, I strongly suggest Spirulina. Since taking Spirulina, my RLS has disappeared, and it also helps with sleeping issues and increases energy levels.

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Comment from: Mandy123, 45-54 Female (Caregiver) Published: October 04

I have had RLS since my early 20's. I am a 53-year-old female. My feet will get really tingly and itchy. My doctor has put me on gabapentin and Klonopin. They are not helping much anymore. I take Vicodin for my back, and that seems to help some. My legs ache all the time. I cut out caffeine, but it's still bad. I feel as if I am stuck in a loop. I am so tired because my legs bother me, but I can't sleep. My doctor says she can increase the gabapentin, so I will try that. I also saw someone said putting Vicks on your feet will help, so I will try that, too.

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Comment from: Rachel, 65-74 Female Published: September 13

I can some relief with one half pill of my prescription of klonopin. Also a red hot shower sometimes works. I am 72 and have struggled with this for years. Also a hot cup of decaf tea and knitting can work. My dad had it - he soaked in a hot bathtub (this was before showers).

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Comment from: friskiekatz, 55-64 Female (Patient) Published: August 31

I started having RLS in my 50's. I can't stand it. It's three in the morning before I fall asleep. My legs have to move. I have crawling sensations down my legs.

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Comment from: O Lucas, 75 or over Female (Patient) Published: July 29

I am 77 years old, have experienced Restless Legs Syndrome for several years, it hard to explain, cannot sleep legs keep me trashing and cannot sleep, if I stand up and put pressure on my legs I do get some releif. It is probably the most annoying pain anyone can experience. My Dr. put me on Ultram about 15 years ago (not generic) that did not work for me. The ultram taken 4 times a day works great. It is very experience and do not know what i am going to do as I can not afford it anymore.

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Comment from: Iamasinger, 65-74 Female (Patient) Published: July 29

I am a 67 year old female. My RLS symptom is an uncontrollable urge to move my knees. Last night I spent 6 hours in a very busy ER trying to get some relief. The single doctor on duty gave me a antidepressant! Needless to say, I didn't take it, because I am a very positive person--a Pollyanna, whose glass is always half full. I was on Mirapex, but can't afford it anymore, being on Social Security and a small pension. I will call my doctor about Tramadol, which I read about on this site.

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Comment from: Suzy, 65-74 Female (Patient) Published: April 18

I have had restless leg syndrome for many years. For the last 15 years I have been taking Klonopin, which has been very helpful. Although my symptoms have gotten worse over the past two years and my doctor has added Trazodone to the Klonopin to help me sleep. The horror of the creepy, crawly, jerky, jumpy, pain that I feel is just too much not to try whatever I can to make it stop. I intend to get off caffeine just as soon as I can, and I'm also going to try Magnesium (I heard that it helps). I do feel better when I exercise too. At night, when the medication isn't working any more, I get up and exercise, focusing on the area where the jerking seems to be originating from, in my case, my lower back. I hope this helps somebody.

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Comment from: RLS in WNY, 35-44 Female (Patient) Published: March 28

Since I was a young child, when I would sit to watch TV in the evening, I would experience what I called "jumpy legs." The symptoms included severe cramping and pain in my legs and feet, which was only relieved by strongly kicking my legs, flexing, and extending my legs and feet. All of which just seemed to make it worse despite initially feeling good. My parents thought I was making it up for attention and no matter how I tried to explain the sensation, they never understood or even believed me. I was in my 30s before I realized it was an actual medical condition and sought treatment. As an adult, the restless leg syndrome (RLS) has worsened as I age. At times I lie in bed kicking, stretching, flexing and otherwise trying to fight against the pain and uncontrollable urges to move to the point of crying. It's incredibly frustrating! It is always worse when I am really tired.

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Patient Comments

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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